This is my personal experience of surgical treatment (cheilectomy) of hallux rigidus.
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12 May, 2012
How did I get there, the surgery, and first 24 hrs after
I got mine in the right toe several months after I "stumped it" - I hit the toe quite strongly against the base of a sliding bathroom door in a hotel bedroom. It was at night, so I was wearing no shoes, and you can imagine that my body was fully relaxed, so any protective muscle tension was very low - which I think must have contributed to the scale of the damage. It hurt rather bad, but I 'walked it through' - and even continued running on a treadmill (this was my routine - I was 44 at that time and ran up to 7 miles 3x in a week). I had it X-rayed, but that did not show a fracture or any other damage.
With time, things got worse - it hurt while running, and even during the rest, I got lumpy knuckles that were quite painful. Unfortunately, things were not improving, so I decided to see a podiatrist in November 2011. He X-rayed the foot and saw the osteophytes grow on the dorsal (upper) side of the joint - he gave me three options: do nothing and withstand the pain, or have a cheilectomy (chisel away the spurs), or do the fusion (immobilise the joint with a screw).
It took me a few months of thinking; eventually, I decided to have it treated with a cheilectomy. An orthopaedic surgeon was recommended to me (no offence to the podiatrist, but as I was about to have my joint open, I wanted to make sure that I would have carefully chosen the person who would do it), and I went for an appointment. He confirmed the diagnosis and agreed that a cheilectomy would probably be the best treatment (it was stage II of joint involvement). So we scheduled the surgery for mid-May.
Before the surgery, I was reading a lot about the recovery time, and there were reports of anything from no pain at all and walking and driving after 3-4 days up to a long recovery of several months. So I took the middle case and assumed that if I have the surgery on Friday, I should be able to work from home the following week, perhaps start driving 10-14 days after the surgery, and maybe even fly for a conference 3 weeks after the surgery.
So it is 12th May today - and I had surgery yesterday.
The surgery experience was excellent. I went into the hospital at 7 am, got all the information collected several times, and got my foot scrubbed and shaved (I am a hairy animal). The anesthesiologist suggested a local nerve block plus putting me to sleep shortly (rather than proper general anaesthesia). I agreed. So I had to change into a gown, got my bar code wristband, got "plumbed and wired" (vein access + electrodes for heart monitoring), and the anesthesiologist gave several anaesthetic injections into various places (probably 6-8 or so - I do not remember). These are not pleasant, of course, but I would not say they hurt. A few minutes later, my foot was numb completely (which he confirmed by squeezing, pinching and pricking my toes).
I was taken to the operation theatre at quarter to 9 am and jumped onto the op table. They gave me the "heavenly milk of dreams" (it is white and looks like milk. It is propofol - the same that was overdosed in Michael Jackson). Then I heard "it is over"; in fact, it was over - I was moved back to the cart and taken to the post-op room. I must say that immediately after waking up, I felt happy and fantastic (if not the best I ever felt in my life - that must be the effect of propofol or something else they gave me). There was a huge dressing on my foot and a post-op black shoe. No pain whatsoever - I was in an excellent mood and was joking around and teasing the personnel. They gave me biscuits and a soda; I asked for coffee and got it too! We phoned my wife to get there. It was 10:40 am, so less than an hour. She came 10-15 minutes later, and I was given a walking aid (the balcony-like one) and told to go to the bathroom to change back into my clothes. I had no problem with that (again, no pain at all). As soon as I was in my clothes, they put me into a wheelchair and gave me an ice pack to use at home; five minutes later, I was in my wife's car going home (with my foot on the dash because I remembered to keep it elevated). We stopped on the way to buy shower protection for the foot, and that was when the numbness started to subside, and I started feeling some pain. I took two Percocets at that time. 15 minutes later, we were at home; I limped from the garage to the living room using crutches and laid down on the sofa with my foot elevated. I had a huge bowl of ice cream and got incredibly sick (after Percocet mixed with the remains of anaesthesia in my body, I think), but I did not throw up.
For those who are more curious, I have attached a photo taken during the surgery - it is a photo of an open joint, so if you are too sensitive, do not look there.
The surgery was yesterday. I was taking two percocets every 4 hours yesterday, today reduced it to every 6 hours, and it keeps me in very good shape. On the one hand, the pain is much less than I had expected or read about - practically non-existent; on the other hand, oxycodone induces some sleepiness which does help (and general pleasure, too - in the end, it is quite a strong opioid). I am taking it on a fixed schedule, so the pain is prevented and not fought against; they also say it is the best way to avoid dependence. I had some nausea after the second or third dose, but now I am 100% OK. I can walk in the post-op sandal with crutches or limp around without; I can wiggle my toe, and I think that I can bend the joint a little (although I do not want to break the stitches!). Most of the time, I stay in bed with my foot lifted; I cannot see much use of the icepack - the dressing is too thick to let me feel the cold. The dressing has leaked a bit, and there is an ugly stain on it - but this is normal, so who cares. I am going to have a shower later today.
All in all, this is much less difficult than I had expected or read about; I hope to be able to reduce/stop Percocet in a few days. I will keep writing about it daily, hope it may help someone who is planning to undergo a similar procedure.
As an MD, I know very well that everyone is different, and everyone's surgery and recovery after surgery are different. So this is my personal experience - which I hope will be helpful.
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Hi everyone- this is a helpful blog, and my while experience has been very similar, I have some differences, and will try to add comments throughout this excellent blog. I am not a doctor.
ReplyDeleteI am 54 y.o. male, one month and three days out from a Cheilectomy/moberg on my right big toe.I waited too long to have this operation done, and basically stopped running 3 years ago because of the pain. I am however, an avid skier, hockey player (ice in winter- roller in summer) and bike rider. While I could not run, and had pain walking, I could participate in those sports because they had flat boots with little flex in that arthritic joint. Finally my foot was painful even when riding bikes, so I scheduled the surgery.
I would choose you doctor carefully. I saw three orthopedists, two of which specialized in foot surgery, and went with the one I thought gave me the best advice, meaning that he was very interested in my activities, foot wear, delaying the surgery and doing the minimal amount of surgery to get relief. This Doctor had done a TON of Hallux rigidus operations, and I researched everyone as best I could on line. My GP even pushed me to a particular hospital because of the low infection rates there.
The surgery was very similar to above, but they administered the propofol before they did the nerve block. Also when i woke up and hung around the hospital, they gave me a cane, rather than crutches. You definitely can not drive yourself home from surgery. My wife was stellar that day, and did the honors.
Also, prior to surgery, I found a great wedge foam pillow at the hospital's pharmacy, which was excellent for elevating my foot, either on the coach in front for the TV or in the bedroom at night.
I had an early morning surgery. I started taking the oxicodone that night, after the nerve block began to wear off.
Your story and the previous one are so encouraging...I need the surgery but I keep postponing as I have been so afraid of the pain,,mostly from reading accounts by people who had fusion,not cheilectomy..I feel more confident now after reading your experiences.Thankyou.
DeleteThank you for sharing! I have finally been diagnosed with this and after suffering pain for years, am going ahead with the surgery. Would you share who your surgeon was? Thank you!
DeleteParsifal..where did you have your procedure done and by whom? Thanks in advance.
DeleteParsifal..where did you have your procedure done and by whom? Thanks in advance.
DeletePrayingmatis10, please send me an email to inwi00-parsifal@yahoo.co.uk - I will let you know the details (I prefer not to do free public advertising on this blog).
DeleteI just had the surgery 2 days ago. They had to put metal in as there was so much damage. They sent me home with the vidocin/Tylenol prescription (can’t remember what it’s called) but it is only taking the edge off. I am having constant discomfort. I called the surgeons office to inquire about taking some Advil as well but they told me not to. So I am just icing it, elevating it and praying that the pain will subside soon.
DeleteI had some similar experiences too, but found ice essential. Used Torredol for pain. Was numb most of day from regional block. In bed with foot elevated after arrival home.
ReplyDeleteHi - I am a 58/59 y.o female, graduate of a complete left Grt Toe joint replacement in 2006 due to advanced arthritis. My podiatrist recommended that I get a Chelio on my Rt Grt toe after an Xray subsequent to a major trauma to the 4th Rt toe suggested I do this for bone spurs. At the moment the spurs are visible but cause no pain and ROM feels adequate to me. However, I trust this man as he is widely known and respected here in town and he consulted in the OR on my joint replacement.
ReplyDeleteSurgery is scheduled for Monday AM, will get the chelio and will also get an arthroplasty on Rt 4th toe as the Xray for that one shows a lot of arthritis and the trauma has caused a lot of swelling. Ligament may be damaged, don't know if this will become an arthrodesis in the OR - much to be learned after he opens me up.
Much thanks to Parsafail and to Al and AB for their inpuit.
I'll add mine to the mix as long as the blog us up and I am welcome to do so.
THx especially for the support for the pain. The joint replacement barely ached (but the pain before surgery was unbearable - I could hardly walk and couldn't wear shoes at all). DPM, reading the internet and all three of you tell me there WILL be pain with this one - sometimes extreme pain.
I'm scheduled to use Ty+Codine, have been warned against Oxy by the pharmacist and the DPM as I have kidney and liver issues.
Have an acupuncturist on call to assist with at home pain relief and will be staying in close contact with my naturopath, and chiropractor.
Thank you, THANK YOU so, so much Parsafail for putting up this blog. For me it's been a gift from heaven itself.
Hi "Anonymous", thanks for your comment - I am happy to publish your experience on the blog, it is up!
DeleteThx Parsifal - will try to do so on a daily basis, as you did.
DeleteYou know, I thought about doing his back in '06 when I had the joint done - write a blog about the experience. Had some unexpected complications the week after I got the surgery and never got around to it. Now I can do so gratis your efforts and contribute to the knowledge base of the blog. That makes me happy.
I expect my story will be a bit different from yours as I am less athletic than you (can't run on the new joint) but I am a long distance walker/hiker (used to do up to 6 mi in a day, just for exercise) so I do have a history of making good use of my feet. I hope to do so again in the future.
Love love love to walk but am considering learning to drive - at this late stage in my life - in order to preserve the integrity of my (altogether 3) surgeries and to give myself full rehab options for the foot and ankle/s. There's nothing like taking a foot like this on a long beach walk. Best rehab PT of all.
And... also... in '06 I learned the hard way to BE KIND TO THE ANKLES TOO post op. That's a story for later posting.
I will be in surgery first thing Monday AM. Wish me luck, esp w the pain. I just have to remember, the worst could be over within a week, but in the meanwhile, props to the pharmacists and to the crutch makers.
For this some pain may be inevitable, but suffering is optional.
That's my motto for next week.
Lady Toes
Hi All: I'm a 50-year old male that first experienced symptoms 15 years ago. Predictably, my condition has worsened and I've put this surgery off because of concerns about the recovery and associated pain. Your stories and comments have helped to partially alleviate my concerns and yes, fear. Thank you for sharing your own experiences.
DeleteI just had my surgery yesterday and am surprised at the amount of pain. I knew it would hurt, but the Oxycodon they gave me only helps a little. It wears off pretty quick.
ReplyDeleteI had the same result upon waking up from surgery though. I felt great and walked out of the hospital with my boot on. I went home and have been in bed since (except potty visits.) I also have my foot elevated. I suspect I have a lot of swelling because when my foot isn't elevated, it starts throbbing...it just feels swollen.
I have an ice pack on it now, but have the same thoughts about the bandage preventing most of the cold from getting to my foot. But at this point, I'll try anything. I'm wondering if I should have iced it last night :(
I am very active but got to the point where I could only wear a few very flat shoes and my foot was usually sore by the end of the day. However, today I'm wondering if I should have just suffered through it? I'm going to continue to read the rest of the blog. Hoping for a full recovery! Thanks for writing this! - Allison
Hi Allison - Lady Toes here
DeleteGlad to see someone else making use of the blog this week!
Soorry to hear you're feeling so sore!
Here are some things that helped me in the beginning:
a) Strictly stay off my feet on Days One Two and Three - meaning use crutches not shuffle in a post surgical boot and do not put any pressure on the chelio foot at all. Let it rest, and spend the first day IN BED with foot elevated.
It helped that I have a loving husband to assist me in the early stages of the procedure. And I'd had foot surgery and an ankle crisis before so I knew how to make my home "foot surgery friendly" for the first month or so.
b) Keep ice on the site - 30 min on and 30 min off, in rotation, throughout the first day, unless I am up for a potty call. The anesthetist said this was the #1 most important thing for me to do to relieve pain, esp in the first 24hrs. I bet it could help you even now.
c) No eating on Day 1 unless I am taking pain Rx then only enough to get the pills safely into my stomach. Otherwise, *lay down" with feet elevated and REST as in pass out and sleep if I can. If not, turn on TV/Netflix download and do not get up off the couch.
d) I had access to house call acupuncture for pain relief should there have been the need. If you can find someone in your area who has experience with this I highly recommend it. Acupuncture is amazing - you don't have to be in day one to get relief if you can get someone good to come to the house.
e) Have faith - foot surgery does come to an end and life can go on with much more satisfaction. Parsifal went skiing on his in about a month. I've done long distance hikes on my Left Grt Toe joint replacement. These surgeries are meant to help, and they do, down the road.
Please don't regret getting the surgery - the pain will only last a week or so and the benefit from having your foot health in order will be much greater.
Besides, you've already had the surgery so - let's find a way to support you in making it to the other side.
I'll keep you in my healing affirmations!
Lady Toes
Allison, everyone's pain threshold is different - make sure you take oxy (ideally in combination with another painkiller, e.g. acetaminophen or ibuprofen) regularly as per your doctor's recommendation, - for example, every hours etc. Do not wear until the current dose wears off - do not allow the pain to come back. I every 6 hrs works for me. Of course, do not overdose, follow the prescription info!
ReplyDeleteIntrestingly, I had my wisdom tooth pulled today, and I am on a combination of oxy and ibuprofen; works like a charm, no pain at all.
Ibuprofen was my lifesaver when I had my dental rebuild.
DeleteI wish you a speedy healing from your extractions.
And yes I agree, everyone's threshold is different and everyone's feet are different. My DPM said it's even possible that the result of surgery can vary from one side of one person's body to another! One side, almost no pain and bleeding, the other side - oy veh.
I consider myself unusually lucky to have come through this without the need for pain Rx but as I said I have a weak renal system, an taxed liver, and an exhausted colon.
Going as Rx free as possible was very very important to my general health and wellbeing. Still, I am only on Day 5. I have several more steps to go on this journey to wellness.
Thanks so much for being here for people like me and Allison.
Lady Toes
I will repeat myself - pain killers are very good in killing the pain. Just do not wait until the effect wears off, take the max dose as allowed by your doctor in a standing regimen. This should block the pain completely. Do not wait for the pain to appear before you take the next dose, there is really no need to suffer!
Delete"...there is really no need to suffer!"
ReplyDeleteI completely agree and so did my DPM. That's why he gave me the Rx for Ty+Codiene and told me not to *plan* to rely strictly on Advil/Motrin (Ibuprofen) or even Tylenol 325x2.
I am exceedingly lucky to have been without need - so far.
In your own story there was a full body stretch and an "OMG!" moment so - by no means do I think I am completely out of the woods. I could end up taking some kind of palliative down the road. If I do I'll be sure to follow exactly the suggestions you've offered (btw this is exactly what the anesthetist said).
When I got the shot of Morphine immediately post surg, it wasn't to "catch a free ride"... it was to keep myself comfortable so I could rest while my body went about the business of healing.
I took the maximum dose of Motrin allowed (800mg) on time every time during the most intense phases of my oral surgery, which involved several of my front teeth and a huge amount of bone and gum tissue around them. Palliative Rx (and to be honest, a fair amount of acupuncture) was critical to making myself available to the rest of the protocol.
I am so grateful that people have developed these wonderful pain killing medicines, especially when I have needed them the most.
I am equally grateful to the docs who know how to prescribe them, how to help people manage the occasional side effects, and know how to lead people through all the phases of recovery from conditions that would otherwise limit their lives.
Thanks again for this wonderful blog - I'm so happy to see it picking up steam!
Lady Toes
"Parsifal went skiing on his in about a month."
ReplyDeleteAllison and all
I did some serious re-reading in this blog today and discovered an error in my comment to Allison. I meant to say that Parsifal went skiing on his new toe in about six months, not one. In the meanwhile he had many adventures, some of them inspiring and some a bit alarming. But all are blessings on us because we get to share them with him in this blog.
This is about the same schedule I followed after my joint replacement in 2006. In 6 months I was much more able to get around, there was no substantial pain from my operation, and in 2 years I am still looking at a lovely curve on the side of that foot, with a joint that pretty much does what nature designed a joint to do in that part of my foot.
A cheliectomy allows for the same result if the joint isn't too badly damaged, and there are many times when the healed foot is better than the one that needed repairs. It's all about getting a good surgeon, getting good follow up recommends, then doing them to the best of one's ability, and retaining a sense of curiosity about the process.
Hope you're having a more comfortable day, friend.
Lady Toes
Does anyone know how I can find the best surgeon for big toe surgery.
DeleteThe pain is becoming too much.
I live in Toronto
greetings. I had cheilectomy surgery last year, the day before Thanksgiving, so I am 4+months after surgery. I have gained ~some~ flexion in my big toe joint and the pain is definitely gone from that joint, HOWEVER, I now have pain underneath my foot in the sesamoid area and cramping in that arch of the foot. I am still wearing a compression sock and doing stretching exercises every day, but the pain is STILL very much there. My podiatrist/surgeon put a felt pad on top of my orthotic to help and it does some, but not with the pain when I am walking/exercising. Anyone having this problem?
ReplyDeleteHi There,
ReplyDeleteI thought I would send an update. Today is one week post-op. Yes, the pain was intense the first 18 hours but it went away faster than I expected. I had the surgery on Wed and took pain meds regularly on thursday. By thursday night, I was able to sleep through the night without taking anything. I only took one pain med on friday and that was the last one. That's the good news :) Still bandaged and looking forward to my two week appointment.
Allison
Thanks to everyone for this wonderful blog! I am scheduled for a bilateral cheilectomy this coming Friday, 4/19. This blog has been a great resource for me as I find it to be the most rational and informative dialog on this subject on the web. There are endless horror stories on health-related forums all over three web regarding this procedure. This blog is like an oasis, providing sane perspectives and thoughtful experiences.
ReplyDeleteI plan to come back here to add my 2 cents once my journey is underway.
Well, here I am 24 hours post-op. I had a bilateral procedure and I have to say that my experience so far has been excellent. I was given Oxy for pain management which unfortunately has a stimulant effect on me. I slept about 2 hours last night and even though I fully understand the benefits of trying to"stay ahead" of the pain by not allowing it to return, but I need to sleep as well! So, my plan for today is to start with just Tylenol and see how the day goes. My pain level has been at/near zero since the procedure and while I know Oxy has helped for sure, my guess is that my actual non-med pain level is probably pretty low. I'd attribute that to having a great Doc, good post op advice from both my Doc and this blog, and bringing a positive attitude to the situation.
ReplyDeleteEven though I had a bi-lateral procedure, getting around is not bad at all. I've got the standard post-op Velcro shoes that I leave on all the time and I really limit the time I am on my feet. I shuffle along without any assistance and virtually no discomfort.
So that's my status as of now. I'll be back to report more of my personal experience.
This comment has been removed by the author.
ReplyDeleteI teach piano lessons in my home. How soon after the surgery do you think I'd be able to get back to that? I guess the biggest issue would be sitting for so long - I better have a footstool handy to prop my foot up on.
ReplyDeleteBased on my experience, I would it give myself a few days, maybe a week - but of course it can go differently for everyone. And yes, it is important to keep the foot elevated.
DeleteSandy,
DeleteI wonder how you did with the lessons??? I'm an accordionist, and I have a concert exactly 2 weeks after my procedure. I need to keep nimble!
Hi Everyone!
ReplyDeleteI had a left big toe cheilectomy with Moberg Osteotomy last Thursday, 7/25 at Hospital for Special Surgery in NY. The surgery went great and I took myself all pain medication on Monday, 7/29, because the Percocet gave me a bad stomach and headache. I am instructed to stay off the foot for 2 weeks with not weight bearing at all. The foot doesn't really hurt at all but I can feel some knitting and a little soreness when I move my toe slightly. Yesterday, I ventured outside down 2 steps with crutches and sat in the sun for about 45 minutes. It was fantastic! On the way back up the step, I barely bumped my foot on the step and now feel so guilty about going out! Inside, I am using a knee scooter that I rented to get around and keeping my foot elevated on a 10 inch wedge that I bought on amazon.com. My giant foot dressing and splint (I look like Frankenstein - no joke!) that I have had since surgery is really lose because the swelling has gone down and I'm pulling on the ace wrap while stretching my shower boot over the bandages. Did any of you bump your foot during the healing process?
Hi! I am scheduled for the same surgery at HSS and was wondering which doctor you used. How are you doing now?
DeleteI bumped my toe a few times during the recovery. It did not seem to do any significant harm, but probably better to avoid.
ReplyDeleteI had cheilectomy on my right foot performed this afternoon. Worst part about the surgery was gettng the Iv! Seriously thank God for anesthesia! I am now home still feeling the effects of the nerve block, so experiencing absolutely no pain. I will try to stay ahead of the pain by beginning my percoset before the nerve block wears off in the middle of th night. For now, my foot is propped up with ice.
ReplyDeleteThank you all for this. I will probably have a cheilectomy in February after my ski trip. The pain is interfering big time with tennis and I'm ready to try anything that will help.
ReplyDeleteThank you to everyone for their reports and replies. And a big thanks to Parsifal for the blog. I have heard many horror stories regarding surgeries and such, and am a slightly deformed patient from a poor surgeons work on a shoulder. So I am very skeptical of surgery.
ReplyDeleteBut several years ago I dropped a large porcelain insulator on my left foot. Ignored the injury for years, but slowly it degraded. Now I have terrible numbing sensations on the ball of foot. Walking and running hindered. I have seen a podiatrist, got the steroid shots. They helped immensely. But now back to cockeyed walk and pain and numb sensations. After reading all the posts I think I will go ahead with the decompression surgery and bone spur removal. Thank you all!
As a side note, I climb poles for a living, 56 years old, how soon do any of you think I could return to work?
ReplyDeleteI wish I could answer your question - but I can not. It probably depends on the surgery itself, your own speed of recovery, and also the use of the foot while climbing the poles (I have no idea how you do it, which muscles work, etc. - your Doctor is the best person to ask). All I can say is that wearing a stiff, hard boot was OK for me, while working in any kind of soft footwear was more likely to cause pain. This is because a stiff boot will immobilise the foot and minimise any tension to the joints and tissues. On the other hand, putting your foot into such boot (and then taking the boot off) may be a challenge.
DeleteCan some one please recommend a good orthopedic foot surgeon in NYC?
DeleteI'm 5 hours post-op and am doing fine. Foot elevated, am rotating ice on and off, and took my first pain pill. Glad to have found this blog. Will be reading it as the days and weeks progress.
ReplyDeleteMy discharge nurse said to start the pain meds (at home) when my foot starts feeling prickly, kind of like the feeling of when your foot goes to sleep. She said (as many others have posted here) to try to stay in front of the pain rather than play catch up. I started feeling the very beginnings of something (pain? Blood flow?) and wasn't sure what to do but when the tingling started, I figured it was time for my first pill. So far so good.
ReplyDeleteThis is the art of post-operative pain treatment - keep taking painkillers, so the pain does don start, do not wait until it hurts. Take the dose prescibed by your doctor and follow the schedule they adviced - it should keep you virtually pain-free. Do not overdose.
DeleteWhat happened to billyk... after the 24 hr post op?
DeleteI'm having a cheilectomy/denervation on R 1st MTP Joint on 4/2/14 but still very nervous! Put it off for years due to all the horrific experiences I've read. This blog has been refreshing and giving me more courage to go for it!
I've been to 2 orthos and 2 DPM.. all of which has mentioned the cheilecetomy w/ osteotomy or a fusion or a z scarf or this ortho mentioned who said he has found the osteotomy not to be necessary and mentioned the word denervation for pain free joint... although would not stop the arthritis.
My ortho said ice is not important as long as u elevate it .. and do not start any motion of the toe until 7-10 days later .... "let it heal first" then PT comes next... Plus I live alone and ice every 20/20 is not feasible... plus with thick bandages how does it even feel ice? Makes me wonder ... I guess
DeleteI hardly ever used any ice - you cannot feel the cold through the bandages anyway. Keeping the foot elevated is very important. It would be good for you to get some help. Make sure you have a post-op shoe, a pair of crutches, a shower chair, and a plastic protector for the leg for showering. Also all your painkiller prescriptions before the surgery.
DeleteLong story short, had my revision cheilectomy 4 days ago, and this experience has been great so far thanks to a contraption my orthopedic surgeon recommends called the cryocuff. No icepacks needed, and I was in it from the time I came out of anesthesia. There is a YouTube video about it that helped me learn how it works. My last cheilectomy, done by a podiatrist 2 yrs ago, was a complete nightmare. Intense pain and swelling from the surgery on for months. Scared to death of this surgery as a result. I couldn't be happier thanks to a great dr and this cryocuff thing. I haven't needed anything stronger than aleve and Tylenol since the day after surgery. Here is what I've done: rest and elevation of foot in cryocuff and modified air cast. No weight bearing this week, even though the boot is on 24/7. I get around on crutches for no more than 10 minutes at a time. Feel well enough to do computer work, watch Netflix, etc. my husband fills the cryocuff cooler with ice and water am and pm, and I change it out every 45 minutes to an hour all day long ( or my kids do it--lol!). I am 45 yrs old, and have struggled with foot pain for 3 yrs--2 yrs since first cheilectomy. This is honestly the best, most hopeful, I have been for 2 yrs, and I am a mere 4 days post op! Hope to run again, but honestly, even a walk with no pain will be pure bliss.
Deletehi everyone--parsifal, thank you for the blog, and thank you everyone else for sharing your experiences. this has been my #1 resource for planning what to expect post-op.
ReplyDeletei just had bilateral cheilectomy (yep, both feet at once) two days ago. 1 tablet of 5/325 oxycodone every four hours and the pain was fairly present (4 or 5 out of 10) the 1st day after the surgey, even through the nerve blocks. elevated religiously, ate pizza ravenously, lounged lazily.
like others, the bandage wraps are too thick for direct icing to be helpful, but both the MD and nurse suggested icing on top of the ankle joint, behind the ankle joint (achilles) and behind he knee. that would at least limit the blood flow to the trauma area. the post-op shoes are a pain to get in and out of, but abolutely critical and made me a lot more confident walking to/from bathroom and kitchen.
cartilage: i had about half of my cartilage severely degraded (for both feet) in the MP1 joint, and MD drilled holes in the bone to stimulate new growth: "Drilling, like microfracture, stimulates the production of healthy cartilage. Multiple holes are made through the injured area in the subchondral bone with a surgical drill or wire." i'm not sure how/if i can track the progress of this, but it seems interesting.
Hello
DeleteHow is it for you 3 years later? My surgeon is also thinking cheilec+microfacturing. But I am reading quite some papers who say the microfracturing rarely has a perfect outcome.
Kind regards
C
I went into a small somewhat rural Canadian hospital at 7am and efficiently was brought into surgery. (Had the choice of the local city hospital too) Reminded my surgeon I would prefer the less invasive procedure (cheilectomy) which he was able to do. He told me I would still likely need to have the fusion/metal plate done at some future point. Amazing it took about 8 years before getting this short procedure! My family doctor, other clinic doctors, and several podiatrists would not refer me. Finally threw myself on the mercy of a sympathetic clinic doctor who was surprised how bad it was (and told me the other foot would soon need surgery too). A year later I was able to see an orthopeodic surgeon, who thought it would probably need a fusion/metal plate. Another eight months until the surgery.
ReplyDeleteStayed up half the night getting prepared, thinking I'd sleep the day away (not!) Didn't sleep at all. I am very happy about the outcome (at least so far!) - I was thinking about how glad I was to avoid the fusion option - So long to heal and then the question about how much function I would have with fused bones and a metal plate - how this would limit my mobility and activity level - not to mention airline difficulties.
I was pleasantly surprised to be given a choice of general anesthesia or sedation. (which I'd had done for dental surgery, and was lovely) I chose the sedation - I dozed while the foot was frozen and watched some of the procedure on a tv screen. (couldn't focus on it too clearly as I was somewhat spacey). It was very Interesting - Being sedated, nothing was too unbearable to watch.
Surgery around 8am, done before 9am and doing well enough to go home around 10am. Unfortunately this didn’t allow my spouse sufficient time to a clean the house. I had been under the impression, I would lose my appetite for a time. (no such luck) As soon as I got out of surgery, my stomach began growling loud enough for the nurse to comment on it!
So here I lay at home on the couch with a cold beanbag on my elevated foot, and a friend’s daughter to keep me company and do her laundry. My spouse has gone to get several prescription painkillers, although I am feeling no pain at present. (prescriptions for T3 with codeine and Tramadol - either to be taken 1 or 2 at a time every 4 hours) He then will get back to his work. (done at home) My foot is red, warm and somewhat swollen and numb. It has been elevated most of the day.
Felt OK about eating some food, lots of water and herbal tea, relaxed and rested on the couch. Spouse was lent a walker from my mother’s vast collection of things. Started feeling somewhat nauseous in the evening as the foot block wore off. At bed time, I lost the contents of my stomach then felt much better, took a couple new pills slept a few hours, then up a few hours, then slept a few hours. It was a relatively pain free day. (worst thing being the IV needle insertion on my tight veins)
I really appreciate this blog site. I am 58+, and have had huge lumps which were first identified when I was 22 as "not being bunions, but interesting" by a doctor at my college. I did not have them looked at until they caused severe pain and limited motion of both big toes when I was in my mid to late 40's. I was very active in sports, and was told toe fusion was the only option from my HMO, and would have cut out all sports. My doctor suggested I could wait til I was nearly 60 as I was very healthy and should still have sufficient circulation to do surgery then. Well, now I am closer to 60, I've had to quit almost all my sports, my toes hurt even when I walk, they hurt when I do my yoga class, they hurt when I cycle. Today, the HMO doctors say I can do a Cheilectomy now....then later if I still have problems, have the joints replaced (Teflon, nylon?) which the HMO would not offer 10 years ago, that those could last 10 years before I would have to resort to fusion. So, by waiting 10 years ,I've bought 20 years or more of use of my big toe before resorting to fusion (I will be in my 70's by then, and hope to still be quite active). Some of the blogs have put me at ease about the surgery. I would like to write again after my surgery (scheduled 7 days from now).
ReplyDeleteI had hallux rigidus diagnosed 14 years ago but the right toe felt uncomfortable without pain since my thirties. I'm now 70 years old completed a PhD last year and am fairly fit and active.
ReplyDeleteI have had two lots of x rays since diagnosis when I consulted two Orthopedic doctors.
I read up about it but neither doctors suggested the option of having a cheilectomy. So my question would it be best to just that done on both feet first?
How incapacitated would I be with the two is of major concern. So would like to hear of any other people who did both and how they managed the longer term .
My right toe is the main pain source but the left has some restriction.
The comment at the last consultant looking at the x rays was that the left toe looked like an infection rather than arthritis. What does that mean?
The right toe has just about got no movement 'up' now and has started to give shooting nerve pain sometimes even when not mobile.
The left has very little pain when walking but when it does its short ,sharp and hard to bear.Luckily it doesn't happen much.
And - BTW - well done on your PhD! What is the subject?
DeleteHonestly - I would not do both feet at the same time if I were 70. You are fit, but a week of inactivity (possibly in bed or on a sofa) may lead to a quick loss of your fitness level, and it may be difficult to regain later. I would do one foot, and the other one only after I re-gain full (or at least reasonable) peformance. I would say 6 month after the first one at least. Having one foot that is OK makes a difference. My sister had cheilectomy of both feet at the same time, she is younger than me, but it took her a good while to recover.
ReplyDeleteThat's my personal opionion of course.
Hi Parsifal!
ReplyDeleteI'd like you to know, if you haven't already figured out, that I've been using your blog to help me ready myself for surgery, which will take place tomorrow, April 14. Thank you for this informative chronicle of your experience. And many thanks to everyone else, too. I'll be checking in as I go along. I'm pretty nervous right now. Took my last 5 mile run this morning...so bummed!
Marilyn
Marilyn, I wish you a successful surgery, and hope your recovery is at least as smooth and unevetnful as mine wa!. I am aproaching the second anniversary of my cheilectomy, so far I am ver please that I did it (and my foot can withstand long runs without any problems).
DeleteI invite you to share your day by day experiences on the blog - for others, who may be ineterested - thank you.
Had my surgery yesterday, and it went without a hitch. Doc was very happy with the results, and said I have 75% mobility, whatever that means. To me, it means the toe will bend a little more than it was bending 2 days ago.Took what I think is my last 5mg of percocet at 8:30 this morning. I took a total of 5 percocet pills all together, supplemented with some 4 or 6 motrin at intervals. I'm surprised by how little pain I'm having. Wearing a Frankenstein boot and keeping my foot up most of the time, but my MD wants me to move around every 2-3 hours to keep from forming blood clots. I'm also on asperin 2 times daily. Maybe all of this is keeping the pain at bay. I, too, am an avid runner, so I wonder if my having been used to moving (even if it was only 15 or so miles a week towards the end, due to the toe), has helped. Whatever... All I'm thinking now is that I'm moving closer to the day when I can strap my running shoes on and go for a run!!! Hopefully, I won't eat more than I should and gain weight.
ReplyDeleteThank you for your detailed post about your experience. It helps me to get a ballpark of recovery time as I share a similar activity level as you do. Can you share the name of your surgeon, please? I am just in the beginning stages of researching the right person to perform this surgery, and would love your input.
ReplyDeleteOh - also, thank you for posting the post surgery scar. It helps me to emotionally prepare for the inevitable mark across my pretty feet... :-(
Seana, I can send you the details by email, but I will not put it here on the blog - I have set up a temporary email address on which I can be contacted: inwi00-chtmy@yahoo.co.uk. If you send me an email, I will let you know the name & the address of the surgeon.
DeleteAm assuming that these are privately performed ops? Or in England on the NHS? I have been diagnosed as needing a cheilectomy in England but actually live in Wales, a cheilectomy on the Welsh NHS? HAHAHAHAHAHAAA gedoudahere. It's very different over here. If it's a completey shot hallux, then it can be fused. The other option is the highway.
ReplyDeleteUnfortunately, I know very well what you are talking about ... At the time I injured my foot, I lived in England, and I tried to get the treatment under NHS.
DeleteLuckily, one year later I moved to USA....
I know, it's incredible. I was diagnosed 17 miles away by a foot surgeon, in England. He said 'Get your GP to refer you to me and I'll do it on the NHS'. My GP (back in Wales) said 'No, you live in Wales, which doesn't fund that op'.
DeleteThank you, Parsifal, for your blog recounting this journey. I've just had my own cheilectomy 2 days ago here in Toronto, Canada. Although I can't recall any 'recent' traumatic injury, I certainly can remember stubbing and possibly breaking multiple toes as a child. In addition, a possible 'AHA' moment occurred when I thought about why this foot (my right) and not the other--and I realized that perhaps 50 years of pedalling on the piano may have been a factor.
ReplyDeleteThis was getting painful. Walking and running was getting painful. Since I had my initial X-ray a year ago that revealed very severe osteoarthritis in my big toe joint, it seems to have advanced quickly to the point where the surgery couldn't happen soon enough.
Everything you've recounted so far seems to be true for me. MY 2nd day was quite uncomfortable, but today, the 3rd day, pain is well under control, and I've been able to go longer stretches before taking the percocet. I'm expecting by the end of the weekend, I won't need anything stronger than regular tylenol. The only thing I've had to do is undo and re-dress the area, because with the subsequent swelling (even with staying off the foot as much as possible), the dressing felt quite uncomfortably tight. Your blog is going to be the handbook of recovery for me - 54 tr. old active female-so I thank you profusely. I can't wait to be able to run again, and am quite frustrated that I cannot participate in the Pride and Remembrance Run this year. Oh well. All in good time.
Day 5. Foot felt great waking up; swelling has subsided somewhat, although there is significant bruising now. A s soon as I got up and started moving around the achiness has returned, as did some of the swelling, but it sort of feels like a toothache in my foot; not stabbing pains any more. I will try to refrain from any painkillers until bedtime.
DeleteI plan on returning to work on Tuesday, so a total of 6 days, including surgery day, away from work. Perhaps a bit early, but I do have the option of teaching while seated with my foot elevated. I tried driving the automatic vehicle yesterday with no issues whatsoever. That is so encouraging--being able to get out myself and fetch anything I need rather than depending on my partner, who is already freakishly busy picking up the slack as it is.
I also have my post-op dr. check-up this Thursday. I have lots of questions about how extensive the damage was, and I'll be able to see how many stitches. I tried the day day I re-dressed the wound, but that layer of gauze was definitely stuck to it, and I had no interest in more pain.
Thanks so much Parsifal - this blog has saved me! I am now 4 days post op, and my recovery and experiences are tracking with everyone else. Day 1 was minimal pain because of the blocks/injections during surgery. Day 2, was pretty brutal but tolerable with Hydrocodone (max dosage) taken on schedule. A bit of a problem sleeping, and some vomiting on day 3, but stopped taking the hydrocodone by 1:00 am on day 2. My doc sent me home with an "ice machine" foot wrap, which I'm supposed to stay on as much as possible. It seems to be a much easier experience than others who have had to apply ice packs. No crutches, an ortho shoe, heel walking and very limited activity. Have not left the house yet, but feel by tomorrow it will be doable. Do not see my doc again until 2 weeks post op, at which time the stitches will be removed. I'm an avid tennis players (63 years old), and hope to be back on the courts in two months (and hope to be back at the gym next week). I'll keep my progress updated.
ReplyDeleteA week today I will have both my feet done - I am a bit scared. Anyone know how you get up a set of stairs - do you put the wait on the heal? I have my 40th Wedding trip to Chicago in one month after surgery - do ya all think I will be able to walk around ok????
ReplyDeleteI'm going to have surgery done on my left big toe in the fall if I can wait that long. I was wondering the same thing about getting upstairs. I work at home as a transcriptionist and was wondering how that was going to work after the surgery. hope you get an answer.
DeleteI had no problems climbing the stairs on the third day after the surgery - wearing the ortho sandal. As for working from home, this should not be a problem as soon as you discontinue the opiate painkillers (they can give you a severe brain fog) - usually on the third day or so; some people manage without them at all.
DeleteThanks much for posting this blog. I'm 24 hours out from a bilateral procedure and while my right foot (formally the most painful) is currently in very little pain, my left is incredibly painful on the ball of my foot! Even keeping the hydrocodone on schedule doesn't really keep it at bay... Anyone else experience pain on that area? I am excited to finally have the bone spurs (caused by dropping an oven while moving - ouch! - when in my early 20's) removed ... I am 56 and have had the painful spurs for many years. I decided to do both at the same time for a couple of reasons - one- my husband, as I knew he would, has been a great nurse and has helped my recovery and comfort tremendously, and 2 because paying the deductibles and out of pockets are pricey and I didn't want to have to do it twice, and finally, I am blessed to have a good job in higher education with good benefits and holiday days off... plus I was really tired of walking in pain every day. I have been very much looking forward to this surgery and to a relatively few days of pain and then recovering to a much better state of feet! Now I just hope the scarring isn't too bad :)
DeleteThanks again for your positive blog! I'm curious to see my incisions- in looking at your surgery photo your incursion looks to be quite a ways from you actual toe nail and on my right side my incision seems to be really close to my nail bed which is something I did not expect. Well I guess I'll get to know tomorrow when I see the doctor for the great unveiling!!
I have my cheilectomy scheduled in 2 weeks for my right foot. This blog has been very helpful, as far as learning what to expect. What I'm wondering is what I can expect for several weeks/ months post-op. How soon were you driving after surgery? How long did you wear the ortho shoe/ walking boot? When did you resume limited exercise? I appreciate any guidance. Thanks!
ReplyDeleteI posted day by day recovery, please just jump to the relevant dates, and see my timeline and the comments of others. Your three items (driving, wearing the ortho shoe and exercise) are all well covered....
ReplyDeleteGood luck with your surgery & have a speedy recovery!
Morning after my chenille tommy. Nerve block still giving me pins and needles, taking cocodamol and diclofensac sodium for the swelling. Keeping foot up is fairly comfortable and I can walk on crutches fairly easily to the bathroom etc
ReplyDeleteHi there, thanks for posting this, it gives me hope.
ReplyDeleteI am a 23 year old female and THREE years ago I stubbed my foot just an inch under my big toe joint against a hard bit of metal and ever since I have had problems.
I went to a podiatrist but never got it X-rayed, she said it is Hallux Limitus and I wear custom orthotics to relieve the pressure of my joint. But I still get problems. My big toe flares up about a good 4/5 times a year, sometimes I think it is gout with all the swelling and then it looks like a bunion.
It specifically gets worse when I increase my exercise regimen and Sadly I have had to give up a lot of sports including running, gymnastics and dance. So I just swim nowadays for fitness...which I am rubbish at!
I am going to my doctors tomorrow to ask to get refered to a private Orthopaedist, so I hope this can be arranged. It is killing me - mentally.
:(
Hi Dreamerxo,
DeleteAre you based in the UK? Your spelling of "orthopaedist" suggests that you may be. I used to live there when he accident happened to me; sadly I my NHS family doctor did not even mention the possibility of the cheilectomy to me (and even though I am a physician myself, I work in a completely different area). It was "killing me mentally" as well, and my symptoms were quite similar to yours. Luckily, in 2011 I moved over to USA, and here everyone recommended that I undergo cheilectomy. Perhaps the private orthopaedic surgeon will consider it as well. I wish you good luck - as I mentioned elsewhere on the blog, it has been over 2 years since I had my foot "fixed", and now I have practically forgot that I ever had the problem.
Yes I am based in Scotland :)
DeleteMy podiatrist did say as a 'last resort' I could look into surgery requiring a square cut out of the top of my toe joint but she would recommend this as a LAST resort because I am young and starting university. But honestly I can't handle my less active life.
I am hoping my doctor does feel comfortable referring me to a private hospital.
I have read alot of successful stories with this type of surgery and I don't want to leave it too late :/ I mean I'm sure I have at least 50 years left of my life!
I will keep you posted on my journey. Thanks again for this blog post.
I feel so blessed to have found this blog. I have been putting off this surgery for my right big toe for about 2 years now. I just turned 47 and was a runner/jogger (3 miles / 3 to 4 days a week). However, the joint in my big toe would cause me so much pain and swelling, that I had to stop 3 years ago. I walked for awhile, but in no time, even that was too much for the joint. I went to see a podiatrist and she recommended a plate be screwed over the joint to allow smooth movement. I was not convinced, so I consulted with an orthopaedic surgeon. He recommended the cheilectomy. I had more peace about this procedure than the alternative, but I still have put it off.
ReplyDeleteHowever, my toe now always aches after walking in even flat shoes (forget about the heels I use to love wearing) and the joint and surrounding area on top of my foot is constantly swollen. The lack of cartillage and resulting spur is now becoming much more prominent and vainly, I have had enough!
We have an overseas trip scheduled for the first of October, so I have decided to have the surgery about a week after we return. I appreciate all the information and experiences everyone has shared. It really has given me the courage to go thru with the surgery. So thank you everyone!
I know everyone's healing time is different, but I was thinking of scheduling it on a Friday so I would have the hubby home all weekend to help me with the first 72 hours. But as we are empty-nesters now, do you think I will be ok to be home by myself starting that Monday and thru the week? I would really prefer not to have to ask someone to come stay with me, but I will if I have to. Any thoughts or suggestions would be greatly appreciated!
Fl Lady
Hi FI Lady,
DeleteThanks for your comment. It is impossible to say what your foot will be like 3 days afer the surgery. If you are generally fit, if you are having only one foot done, and if your recovery is as good as mine, you should be fine alone at home - I was denfitely able to look after myself very quickly, pratically on the day following the surgery. But things may go differently for you, and I would recommend that you make appropriate arrangements with someone to be "on call" - i.e. to come and help you if needed (hopefully you will not need this). Good luck!
My cheilectomy is sched for dec 23. I'm a little apprehensive after reading the above.. My doc said it would be a regional block w/ happy drug (he didnt say versed, but that was my impression).. He said I would NOT have general anesthesia (which I'm petrified of).. yet, above, everyone seems to be getting propofol which is the induction agent for general anesthesia. Did you have general?
ReplyDeleteI have been reading your blog since March when a podiatrist recommended a cheilectomy. Thank you for posting it. I had no idea what a cheilectomy was. I am 57 years old, had several significant toe stubs while hiking in my 40's. Until one year ago, my toe has only bothered me occasionally, but has gotten significantly worse in the past year. I am limited to wearing only crocs and flip flops - too much pain having any shoe touching the top of my foot. I do get into my running shoes a few times a week for a slow run- I seem to be able to tolerate them for a short time. I so miss doing yoga, which I just discovered two years ago. Down dog is impossible. I am having surgery on Oct 21 by an orthopedic foot specialist- a cheilectomy, possibly an Akin procedure to correct bunion that resulted from my arthritic toe joint, possibly a fusion. My surgeon recommended a fusion, but I begged him do just do the cheilectomy. He is going to make the decision when he sees how badly damaged the joint is- I won't know until I wake up. He did not mention crutches, but I see from this blog that most people are using them. I am thinking that maybe I should get a pair. Thanks again for your blog. It has relieved much of my anxiety
ReplyDeleteHi,
ReplyDeleteI need to have a bunion surgery in less than a month.
I read alot about cheilectomy surgery and I would like to know the name of hospital or private clinics that are practicing this method. Txs.
I'm an active 70 year old (ski patroller, bike enthusiast, hiker, etc) about to have bilateral chielectomy. I'm an empty nester (wife still works abour 25 miles away from home). A couple of questions...Is chielectomy being done non-invasively anywhere (in other words, either robotically or at least with minimal incisions)? I live in a 2 story house. Will I be able to mount the stairs? I'm probably average when it comes to pain...shoujld I ask my wife to spend day 2 post op at home with me?
ReplyDeleteBeau, Cheilectomy is what it is - it is an opening of the joint, and it is chiselling of the spurrs off the bone. I understand you worry about your ability to function after the surgery - and my advice is to make arrangements for someone to say with you for the first few days. You should be able to mount the stairs - slowly and probably with lots of effort, but carrying something may be a big problem. Why not make an arrangement for someone to come home with you after the surgery (you will not be able to drive back home anyway), and stay for as long as you need assistance? Perhaps you will be fine after a few hours, perhaps on the 2nd day, and perhaps you will need help for a few days. Impossible to say. how long it wil take in your individual case I was glad that I was not left alone on day 1, thus initial planning for 1-2 days does seem very reasonable to me.
DeleteI stumped my left toe 12 years ago. 5 years ago I was set to have a cheilectomy but had to put it off because of a unrelated infection. When I went back 2 years ago the surgeon said I had waited to long and he would do a cheilectomy with the decompression cut . He said it would only last a couple of years and I would probably need a fusion at that point. I went for second opinions . The 2 surgeons I found that were most highly recommended said FUSION . I showed them arguments for successful results from aggressive cheilectomy in Stage 3 and 4 cases. They wouldn't even consider it. So I continued my active lifestyle and dealt with the pain. Recently the pad of my foot has been experiencing more pain. I went to another Dr. , he thinks a cheilectomy would be the best option for me. That was great news to hear and I now plan to have the surgery soon. The xrays show the bones that come together at the joint being very close together with little room between them. The Dr. says he will be able to see how good the cartilidge is and decide if I need the decompression. Does that sound like a good surgical plan? Can quality of cartilidge be determined from an Xray? Has anyone had good toe movement years after a cheilectomy with decompression cut of the metatarsal bone? Thanks in advance for any info or opinoin you all can share
ReplyDeleteI am 35 years old and I am on my 4th day post op for a bi lateral hallux cheilectomy.
ReplyDeleteI had both feet done and I am glad I did it !
yes the first two days were painful and you feel sick but I know if I didn't do both I would not go back for the second.
I feel the most difficult part is not being able to do what you normally do . I have 2 kids 5 and 2 years old so thank God for my husband.
Just wanted to post that it's not so bad it's bearable and I would recommend it .
So I'm a 29 year old male. About 3 hours post op and feel fine so far. I am trying to find out if my surgeon is crappy or not though. I feel like I received next to no instruction other than rest, ice and elevate for 3 days. Boot stays on for 11 days. That's it. I'm an athlete, I run and do all sorts of sports. I want to be aggressive (in a healthy way) about my recovery. Did other peoples surgeons give them exercises to do and other things like told to walk around without the boot on after a couple days? I have no instructions other than elevate and ice for three days and boot stays on for. 11 days until my post-op appointment which isn't even with MY dOC!!! Just a PA? Does this sound odd?
ReplyDeleteHi Kevin, I do not think this is too unusual. Everyone's recovery is a bit different, you will see what your body is allowing you to do, and what it does not. Please read this blog and the comments, you will be able to see how it worked for others. If you need to have a good use of your foot in sports, you need to give it time to heal. For the fist 11 days, I would not do any exercises,and PA will be able to remove the stitches on day 11, so it seems perfectly OK to me. Have a look at my blog, most people need a good few weeks (it took me 6 weeks until I tried running). You really cannot speed up the healing process, but you can easily ruin your foot by putting too much stress on it. The rule of thumb is that when the pain subsides enough to allow running, you should wait another 3-4 weeks, this is to make sure that the fresh tissues and scars do not get damaged - that would take even more time to heal, Talk to your doc or the PA at the check up visit.
ReplyDeleteGood luck with your recovery!
I was so happy to find this blog before my surgery. It has been so very helpful. Thank you everyone! I'm a 45 year old female and had my right toe done last week. The left foot will need to be done but I hope that will be a few more years. Two very helpful things I learned here are the plastic shower seat and the curad cover for showering. These both were great!!
ReplyDeleteOverall I had more pain than what it seemed others did. I don't tolerate pain meds well so it was difficult to find something I could take and what I was given did not help very well. It took several days that I could really even try to sort of "walk." Day 6 was rough and today is day 7 and I feel so much better.
I am 61 and in good shape, which is why I decided to have this surgery. (I go in next Tuesday for it.) I've found that over the past year I've been walking more and more on the side of my foot and expect it is throwing off my hip and everything else in my body. I'm hoping that I have as easy a recovery as many of you have. Since I hate pain meds, I'm going to try to survive on Advil alone post-surgery. Your blog has been very helpful, so thank you for posting your experience.
ReplyDeleteHi. Thanks for this blog. I need the cheilectomy on both feet. Anyone had experiences with both at the same time, with regards to how much longer the recovery takes? Thanks!
ReplyDeleteHi there,
ReplyDeleteHas anyone on here had a plaster cast put on after the chellectomy? I was expecting only a walking boot but instead woke up with a huge plaster cast and instructions for no weight bearing at all. Surgeon said my "bones were in bad shape." I go for my post-op tomorrow and I pray the cast can come off, as spending 8 days on crutches and crawling around has not been easy or pleasant.
I am just wondering how common this is.
Thanks for maintaining this blog! It's been super helpful.
I was wondering what happened with your bones [you said they were bad] My doc told me the same thing. Osteoporosis? did you have it checked out? Thanks!
DeleteThey checked me out for rheumatoid arthritis and all sorts of other stuff and found nothing. I was told I couldn't have a bone density scan until 6 months after surgery. I do expect that I have osteopenia because that's how it's been trending, but otherwise nothing. I hope the same for you (i.e. nothing specially wrong).
DeleteHad cheillectomy on left big toe yesterday. Pain has not been too bad, able to get around the house as needed. Taking hydrocodone every six hours. Will try to go to work tomorrow and prop my foot up on a box and bring an ice pack.
ReplyDeleteHello everyone,
ReplyDeleteI had my surgery done this morning.
Several years ago I dropped a piece of firewood on my right foot subsequently breaking the first toe to the right of my big toe. I had no idea at the time that I would have complications in my big toe later on. My podiatrist diagnosed me as having Hallux Rigidus. He explained all my options to me but him not being a fan of surgery we went with the custom orthodics and a cortisone injection. This did provide some temporary relief however, switching insoles constantly from one shoe to another wears thin quickly. He also said the joint was shot so eventually I would have to either do joint replacement or have it fused neither of which sounds exciting to me. Last year I made an appointment with an Orthopedic surgeon. He took Xrays and determined that the joint was fine and that I would be a good candidate for the surgery and that there wasn't any need to rush to get it done. A year later and after a cold winter it's now mud season so I felt this would be a great time to get this done. I got in a week of skiing and hiking in NH in February and would like to be able to salvage the softball season and more hiking this summer.
I'm now laying on a cot in the family room with my foot elevated. The oddest part of the experience so far is that they did a pain block, kind of like a Novocain needle to your leg. I can't feel my leg below the knee or move my ankle. It's really weird.
Tomorrow will be the test I suppose of how well my Percocet prescription will work. I tolerate pain well and actually would prefer feeling something other than nothing that way I know everything is ok down there.
Cheers
I had a cheilectomy on my left foot about four years ago. I am going to have it done on my right foot in less than a week. I wish this blog existed when I had my first one done. It is helpful to read about the experiences of others. I appreciate that so many have documented their experiences here. It allows patients to see the variations in recovery experiences.
ReplyDeleteI am having a difficult recovery with my cheilectomy. Since you had this surgery already, how long do you think it took before you knew it was successful [ wearing regular shoes, no pain] I had it done sept 11 and still want to cry whenever I put weight on my toe. Pain that was on top of the toe is now under and tip of toe.
DeleteI had mine done on January 20 and am still in pain. About a month out, I had a cortisone shot to relieve a shooting pain that went along the nerve to the tip of my big toe. I'm not sure if that helped or it was the acupuncture that did the trick, but that pain did go away. I think the outcome does depend on the severity of the injury. I had fractured my toe at some point 20 years ago and the surgeon did have to clean bone fragments out of the joint as well as shave off the bone spur.
DeleteI had another shot about a month later to give me some relief from the general pain It may have helped a bit, but 11 months out, I still can't walk for more than a half hour without being in pain. My chiropractor suggested I only wear a good running shoe with support (recommended Rokas) and not go back and forth between that and a dress shoe or sandal. I've been doing that for a month and am just hoping that if I wait another few months, the joint will finally heal. Jury is out.
Hi there-
ReplyDeleteThank you so much for this great blog.
68 year old female here, pretty active (hiking, fly fishing, backpacking, power walk, gym daily, did I mention power walk?) Had a bunion surgery on right foot 2 yrs ago. Nasty pain relieved by surgery. For the last year and half left foot also with bunion has been acting up, biting into activities. Visited an ortho and a podiatric surgeon. Turns out I have an old fracture in that left toe. No memory of injury. Podiatric guy said if there is less than 40% cartilage between big toe and metatarsal, it'll have to be fused, and he will not know that till I am under his knife. I have read horror stories of this procedure with women ending up not being able to even get their foot into a flat boot as the toe is at an angle the prevents wearing of anything other than "rocker sole" shoes, and having a duck like gait. This man has come highly recommended by two friends who were pleased with their surgeries, but neither had their big toe fused. Anyone out there in cyber space with experience with their big toe fused?
Great blog! I had the cheilectomy on the right big toe joint in November 2013. I only had a few months of relief once I was healed from the surgery. The pain in the joint has continued to get worse again. I finally went back to the podiatrist, and found out that the arthritis and spurring has returned, and is already worse than before I had the surgery a year and a half ago. I am only 31 years old, so it looks like I have a long road ahead of me. The podiatrist said I can do the surgery again, but she doesn't know how long it will help. She said this surgery should have helped for 5-10 years, and was dumbfounded that the joint is already so bad again. Now I have the dilemma of random pain management attempts, like physical therapy, or having the surgery again. The surgery and recovery went very smoothe, and I am not opposed to that route, but hesitant to rush back into surgery, if it may only be a short term fix again.
ReplyDeleteThank you all so much for sharing your experiences. I'm a 58 year old female and I just scheduled my cheillectomy on RT TOE for Tuesday, June 16 - Bloom's Day! I've been experiencing intolerable burning from the bump for several years now -- and that's the reason that I opted for cheillectomy over fusion. I got two opinions, one surgeon recommended the fusion because of the lack of cartilage and the danger of needing a second surgery. Another surgeon acknowledged the fusion as a possibility -- but suggested that because i have so much mobility in the joint, he felt confident that the cheillectomy could reduce the pain...
ReplyDeleteIt was difficult, but I saw the fusion as a last ditch effort and I'm less frightened by the cheillectomy -- although I understand how difficult it can be. I have a high tolerance for pain. This site has been so helpful. I'm not sure how and where to post, but if I can be helpful to another, I want to provide that additional information.
I'm going to make sure to get the shower boot, the plastic shower chair -- excellent suggestions! -- this weekend. And then, steel myself for the operation. I'm actually looking forward to it. Was so relieved not to have to go the fusion route just now.
Is it possible to dream of a pain free walk? Dare I hope that one day I will be able to wear high heels -- or modest ones? -- to my daughter's wedding?
In any case, here's to Parsifal and all the folks on the site. Standing by -- and will post.
Sorry Victoria, I have accidentally deleted your comment on day 2, and I am unable to recover it. I copied and pasted from your email, but I am not sure if this is where you wanted it. Perhaps you can resubmit your comment, and I will post it.
DeleteApologies again,
Parsifal
Has anyone experienced referred knee pain with this condition? I have hallux rigidus (diagnosed by x-ray about a year ago). The bone spur on my toe is not painful, however, the knee on that side has become painful. I don't recall doing anything specific to injure my knee. I am wondering since the toe is unable to bend fully if it's putting pressure on the knee joint.
ReplyDeleteDay 1 hurt a little more than I was expecting. The nerve block wore off in the afternoon (rather than in the middle of the night, as they had suggested), so I started taking the pain meds then. I was taking two Oxycodone plus two Tylenol (same combo as Percocet) every four hours, but it was still very achy. I wish I had thought to take a couple of ibuprofen in between the doses.
ReplyDeleteMy foot feels much better when it is elevated, so I've kept it up high almost all the time. It's uncomfortable to lower it, and really painful to put even a bit of weight on it. I'm amazed to hear that many folks are able to walk on it at this point -- ouch!!
The pain did start to ease up during the night. I didn't sleep much during the first half of the night, but did much better the second half.
My surgeon wrapped up my foot in big thick bandaging and said not to take it off until I see him again in two weeks, so I can't really see how the foot looks. I had worn fairly loose pants when I went to the hospital, but even those weren't loose enough to fit over the bandage when it was time to get dressed. The nurse had to cut up a pair of hospital PJ pants for me to wear home. Yoga pants or something stretchy would have been a good choice.
Parsifal, thank you so much for starting this blog! It's been a wonderful resource for me as I've been preparing for this surgery. Thanks to all the great commenters, too. It's really helpful to see the range of experiences.
Hello, 49 yr old female, just waiting on surgery for both my feet. Thanks for the blog, really interesting to learn of others experiences and what I can expect recovery wise. Have been struggling with pain in big toes for several years without knowing why, just assumed it was arthritis until it got so painful I went to my gp about it. Fortunately I appear to have been (at last) referred to the right surgeon who has diagnosed the problem (hallux rigidus) and will be performing surgery on my right foot first and also be removing my ingrowing toenail at the same time (yeay!) My only problem is, having high blood pressure I can't take ibuprofen and have an intolerance to codine! So paracetamol and tramadol it is. Wish me luck!!
ReplyDeleteI am 2 weeks post op. I still have some swelling and a stinging feeling on the side of my foot. I had a mtpj chilelectomy on my big toe. Anyone else have this problem. I have to start babysitting my 2 4 yr old grandchildren in 2 weeks anyone think that will be a problem.
ReplyDeleteHi, Folks. I've been a lurker while deciding whether or not to get this surgery, and this was the most helpful forum I found. I thought I'd post for all those women who want to get back into high heels. I dance the tango as a serious hobby, and it's a dance done in stilettos. I don't want to give that up, so fitting my foot into high heels will be a priority for m. I'l try to remember to post my progress.
ReplyDeleteSome background on me: 43-year-old female. Active. Gym 3/4 times a week plus 6-7 hours tango dancing a week. Desk job the rest of the time.
My surgery: First MTP Cheilctomy on my right food + drilling into my joint to spur some secondary cartilage production. I had bone rubbing on bone, which I did not expect to hear because the x-rays didn't look that bad though the pain was pretty intense. My surgery was August 18, 2015 at 7:30 AM. I had a nerve block with sedation.
I spent most of the rest of the day icing my foot 20 minutes on / 20 minutes off, elevated, sleeping on and off. Walking required two crutches because the nerve block did not wear off all day and I could not feel my leg/foot from the knee down. I took my first pain meds at bedtime - Oxycodone - so I'd have some in my system when the pain came.
so, you went back to the tango? That's encouraging!
DeleteThank you for this wonderful blog. I am 56 year old woman, moderately active (tennis and cycling) and 4 weeks post-surgery today and I would not have had the surgery without reading about the what and why from the blog and the comments. Even after reading the blog, I have consulted it daily to match my progress against everyone's.
ReplyDeleteSo far my progress has been in line with Parsifal's. At four weeks, the incision is healed, the stitches are out, and I am back to some wide shoes. The swelling is down significantly, although the foot, primarily the joint, is much more swollen in the evenings. Like another reader, I was able to put on a low pump, but not bear weight. Sneakers are no problem. Most of the time I do not have any paid when walking, and the pain has diminished while walking incrementally over the past two weeks.
My biggest issue now is that the toe joint is not flexible at all on its own and only 20-30% with me moving it. And it hurts. I am concerned that I will not regain mobility of the joint requiring a fusion.
Still the blog inspires and it looks like Parsifal had the same issue, so I have not abandoned hope.
I intend to stay active and positive. Last week I played a half hour of tennis--not moving much at all. And I intend to play again this weekend as well as go for a walk.
Thanks so much,
Susan
So, did your toe improve over time?
DeleteI'm now 8 months out from surgery and I still can't put weight on my toe. If I walk more than a mile or two, it still gets quite swollen and painful. I will admit I play tennis occasionally, which probably isn't good for healing, so I don't yet do it regularly.
ReplyDeleteMy question for others is whether it's normal that after 8 months, I still have to walk on the outside of my foot. Will this always be an issue or is there hope that eventually, I'll be pain free?
Sounds to me like a long recovery. Have you been checked by your doctor, x-rayed, etc?
DeleteYes. Everything looks okay. He's given me cortisone shots twice, which hurt like crazy. (I had some nerve pain going up to the tip of my big toe which was unbearable but is mostly gone now unless I do too much.)I don't want to do that again. I'm now doing acupuncture and that keeps the pain down. I'm not sure if I started playing tennis too early or if I'm just expecting too much too quickly. The one issue I have that shouldn't cause the swelling is a shattered sesamoid bone that I didn't think was causing me any pain before the surgery. I didn't want him to cut in two places if he didn't have to. That could be part of the problem.
DeleteYou should consider going to a new doctor. Is the surgeon the same one who says your xrays look fine? Get a second opinion. You should not be hobbling around now and should be able to walk with a normal gait.
DeleteI've been getting help from a chiropractor who does ART (active release therapy). The joint had little mobility and he's been working it out. He also suggested I only wear a shoe with heavy support (I've invested in some Rokus) and not go back and forth between a sports shoe and a dress shoe or sandal. I'm hoping that it will eventually heal and I'll be able to put weight on the foot. I suspect the joint itself (the bones) is fine but that inflammation hasn't really gone down. I was not given any exercises to do after surgery and I didn't go to a physical therapist. I also started playing tennis once a week about 4 months after surgery. All those things may have contributed to the slow healing. I'm told that it's not that unusual for it to take a year for a foot to heal.
DeleteAre you back to normal yet?
DeleteSee below. Not at all normal, although I'm living with the pain. But I can't walk over a mile and a half without feeling pretty miserable. And I have 2 dogs and used to walk them up to 4 miles a day. I still play tennis, but never more than once a week because it takes several days for the pain to wear down. I do wonder if I would have been better off with the pain from the bone spur, since I feel like I"m even more limited now in what shoes I can wear. But I think I'm an exception. Most of the people on this forum have done really well.
DeleteI had a cheilectomy ten years ago and have regretted it every day since. I really had the operation for cosmetic reasons - didn't like the knobbly bump on my right big toe joint. My surgeon was a general orthopaedic man - maybe a foot specialist would have done a better job, I don't know. My toe joint is now pretty restricted in movement and is constantly painful when I walk. I'd like to say I have become accustomed to the chronic pain - but I haven't. be very careful if you are considering undergoing this procedure.
ReplyDeleteVery unfortunate... I cannot think what my life would have become had I not had cheilectomy. I was getting quite disabled because of the pain and limited movement, and now I am perfectly OK.
Deletegreat blog.I have hallux rigidus in both feet. Had rt. foot done last Fri. I felt great yesterday, no pain meds, walking without crutches, took a shower [sat on a chair] I got up without my boot on and sort of stubbed the big toe! Hurt. Now I am worried. ALWAYS KEEP THE BOOT ON! I went to 5 doctors [orthopedic foot specialists, DPM] Fusion, joint replacement was recommended by all except the DPM who was confident he could salvage my joint without a fusion. He did the cheillectomy, with a bio absorbable implant. He was presented with a problem during the surgery- said the bones under the calcifications were rotted? looked like swiss cheese, yellow [not white] and holey. What this means I don't know. He made it work, but I guess without a good bone, not much to fuse it to. I just hope it works.
ReplyDeletehow are you now?
DeleteSC, N.Z. 23 September 2015
ReplyDelete59 year old female, had really sore right big toe and the one beside it due mainly to a love of dancing in high, uncomfortable shoes. I have an excellent orthopaedic specialist in Invercargill and I have been waiting for an appointment to arrange my right hand carpel tunnel procedure(no anxiety there, he did my left hand 3 years ago with great success). After complaining to my GP constantly about the onset of arthritis and my toes getting much worse he finally sent me for an X-Ray on them and also sent the result of that to my man in Invercargill. I saw him last Friday and he was quite enthusiastic about performing a cheilectomy at the same time as my carpel tunnel. I must admit I was very apprehensive until reading these blogs and the surgery is scheduled for October the 15th. I have a lot coming up before Xmas so I'm hoping my recovery will be reasonably speedy and I have been very encouraged by most to all of these stories. I realise my right hand being out of action for a few days will not help if I needed crutches but see where some people coped well with just a stick anyway. I will be taking all the advice offered and will update my progress. Any other suggestions about how to cope with right hand and right foot both out of action would be very much appreciated.
I'm taking great comfort and encouragement from this blog. I am a 58 yo active female scheduled for a right big toe cheilectomy on Thursday this week. Apart from a rigid and painful big toe I get cramps in my foot arch. I wonder if or how they are linked? I'd be interested to know if anyone had found the cheilectomy improves foot cramping too. I've taken copious notes from others experiences so I feel pretty well prepared. Thanks everyone and wish me luck!
ReplyDeleteI am 1 day out of my right toe cheilectomy and doing well. I injured my toe about 12 years ago and developed severe hallux rigidus. The strange thing is that I have been able to run 30-35 miles a week up to the surgery. Xray showed that I had no cartilige left in the joint and developed a gangolin cyst that had to be drained every 2 or 3 weeks. Ihad no pain but was getting difficult to wear shoes as the dorsal bump was getting huge. Surgery was done around 24 hrs ago and I have not taken any Percet yet. Don't think I will need it . Pain is at a 3 or 4 out of 10. I have done much research on this topic and just found this blog. I chose an orthopedic foot surgeon in lieu of a podiatrist after my local research. Stay tuned for more updates and apprecialte this blog.
ReplyDeleteOne week out with no pain. Never took the pain meds. I have been riding my bike easy since day 3 / 5-10 miles per day. I have been very lucky. Only issues has been back pain resulting from keep my food elevated at my desk / weird angle. Can wait to get back to running.... see the doctor on day 10 to have stitches removed and initial eval. Keep you posted.
DeleteThis comment has been removed by the author.
ReplyDeleteGreat blog!
ReplyDeleteI've had plenty of time to read multiple blogs re: cheilectomy/debridement/subchondral drilling.
I just recently had this done (on post-op day 4) after having difficulties with this for quite some time. I am guessing my case was bad enough as a fusion was suggested but I opted to go this route first.
About me:
I am a 35 year old female (parent of 3 children) who I would say is fairly active (up until a couple years ago). My xrays showed arthritic changes and flattening and both my MRI's (done 5 years apart - one directly after my turf toe injury and the other after I developed a stress fracture of the proximal phalanx) showed an osteochondral lesion with bone marrow edema.
My experience:
Day 1 - surgery under general with nerve block went well. Slight nausea upon waking (which was expected as I had experience this before). Kept foot elevated all evening, as directed. Only slight discomfort as I still couldn't not feel my foot. Took half a percocet before bed.
Day 2 - block finally wore off, I am greatful it lasted as long as it did. The pain was pretty excruciating. Took half a percocet instead of the 1-2 tab prescribed for every 4 hours. This did take the edge off but decided to definitely take a full one at bed time. Foot was again elevated all day aside from the trips to the washroom. Slight Heel weight bearing for these trips but mostly hop and shuffling on the good foot). I did feel too much pressure when not elevated which is why I didn't push it too much.
Day 3 - bandage removed. Foot kept elevated for most of the day though I did start walking a little more on the heel without the need for hopping or shuffling.
The swelling is actually very minimal though the bruising is quite extensive (I do however bruise easily). Only took 1 percocet before bed.
Day 4 - able to put more pressure on the ball of my foot ( just not fully at the big toe). Thing are progressively getting better. Moving the big toe around just a little (and by little i mean a smidge) without pain. Still keeping it elevated whenever possible but being sure to get the foot/ankle moving around.
That is my story thus far!
My follow-up instruction were to remove bandage 24-48 hours post - op and weight bear as tolerated.
Have stitches removed 2 weeks from surgery date and clinical follow-up is schedule 3 days later.
I think thing are moving smoothly. I do have a rather high pain tolerance and therfore don't feel the need for meds but I would strongly advise those who do need it to take it as the pain is definitely validating.
I hope that I am as lucky as those who had speedy recoveries. I am hoping that there is truth behind the getting up and moving early on.
I am not sure of the length of time off work that is needed and this is one thing that weighs on my mind constantly but I have come to the conclusion that I do not want to rush myself back to being on my feet constantly for 8 hours straight. One day at a time I guess! I am already scheduled off for 6 weeks, hopefully this will be ample time and that my surgeon will agree to this amount as its already all arranged.
Thanks all for posting/sharing your experiences, they do make a difference!
and how are you doing now? Glad you had surgery?
DeleteThanks for this blog. My orthopedic surgeon has been recommending cheilectomy for some time, and I'm getting close to pulling the trigger. 57 yr old female, quite active, very demanding legal practice (which involves some travel but I can mostly do from home.)
ReplyDeleteHaving had multiple unrelated surgeries, I know the importance of preparation and setting up your home for a smooth recovery as much as possible in advance.
So - specific suggestions?
1. The cryo cuff has been recommended. I used something similar with great success after knee surgery years ago. Is this what folks have used? https://www.activeforever.com/aircast-cryo-cuff-foot-system-with-cooler
It looks like it might not go down far enough to cover the big toe joint - is that correct, or does this work fine? Other products?
2. Is the shower chair really needed? How long do you need to keep the foot dry? Is the purpose of the chair to prevent falls? I imagine I can probably crawl into a bathtub while protecting my foot.
3. Other practical suggestions? Various supports/pillows to aid elevation?
Like others, I really don't want to do this! I could tough it out for another year or so, but I'm concerned that the arthritis may worsen and then cheilectomy could become not viable. Also, first grandchild is due in 4 months and the family lives in NYC, where travel is not simple (lots of trains, lots of stairs), so I'm thinking I should move on this soon so I have time to heal before the birth. Thoughts?
Thanks, and continued good healing to all of you!
I used the chair in the shower just for comfort - no way to stand on the foot that has been operated on. Also getting into the tub (and out of it) may be a bit tricky for the first 1-2 days.
DeleteThankful for this blog, it was a helpful prop resource. I actually just had bilateral cheilectomies this afternoon. I did not receive nerve blocks as he did not want both feet numb for mobility purposes. This was also my first experience with general anesthesia but did okay (just groggy a bit longer than previous IV sedation).
ReplyDeleteI have yet to take any pain meds but am fairly uncomfortable so am thinking I may need relief to get a good night's sleep. I asked for something weaker than Percocet as I found it too strong after a prior procedure (I only weigh 100 lbs and had never taken pain meds before). They prescribed Vicoden this time so I am planning to start with a half and go from there.
I will try to post updates as I progress. I'm so looking forward to my first pain free workouts in years!
I'm currently recovery from this surgery on my right foot. One important note to add to this post is this is my second one, first surgery was on the left foot. First surgery 6 years ago was major success. I had that surgery because of being unable to run . At the time being a 43 year old runner & cyclist I was unable to be active without pain. That surgery completely fixed everything and up until a few months ago I was 6 to 7 days a week of heavy exercise. Add to that my occupation of elm pe teacher and father of 3 boys and my activity level is high. Several months ago I started recognizing similar signs but in other foot. Long story short I just had same surgery on other foot.
ReplyDeleteMy story of recovery in the first few days for each surgery is quite different from the other posts. I can't tolerate pain meds. This surgery just as the last I find myself unable to take anything for relief. I've had major nausea and decided to scrap the meds plan. It was either relief with nausea/throwing up or pain and no nausea. I chose the later. This is the only complaint and obviously it has nothing to do with the longterm outcome. My advice is just check into a few options for relief because without help the first 1-3 days are brutal.
I am a (relatively) healthy 66 year old male and had a bilateral cheilectomy on Nov. 3 (16 days ago). Unlike some of the others that have posted, I was only experiencing slight pain. Last year, after a hike that included steep hills, I noticed slight pain in both feet; that's the first time I realized how limited the range of motion in my big toes was (about 20º to 25º). I researched on line and decided that a bilateral cheilectomy would, eventually, be necessary. I got a referral to a podiatrist, and we set up the surgery for a couple of months down the road. The surgery was pretty much as described, with nerve block after propofol. I woke up during the procedure but experienced no discomfort during completion and stitch-up (surgery was about 1 1/2 hours). I felt fine and was able to walk/shuffle into the house after the ride home. I chose to keep ahead of the pain and took two 5mg hydrocodone with breakfast, lunch, and dinner; I felt NO pain. I did that for a week (until I ran through 50 tablets). Three days after the procedure, I drove to the store to shop for groceries (used an electric cart the store provided). At home, I spent most days in a recliner with the footrest up and only got up to prepare meals, go to the bathroom, and bring in the mail. I only wore the boots when going outdoors. For showers, I taped two plastic grocery bags to each leg to keep the feet dry. After a week, the stitches were removed and new dressings were applied. During the second week I had no pain killers so there was some discomfort, but nothing unmanageable. Two weeks after the surgery, the dressings were removed and I was allowed to leave the doctor's office in shoes and socks. Today, 16 days after the surgery, I took a 3/4 mile walk with only slight (incision) pain.
ReplyDeleteGreat blog, thank you! I am relatively healthy but mostly sedentary (mainly do some walking a few times a week) 72 year old female. I've had increasing difficulty finding any shoes that fit over my large bone spur as well as more and more soreness when I walk. My DPM recommends fusion for my left toe because he said I am Stage 4. But I am still opting for the cheilectomy as a first step and hope it helps me for a few years. I have scheduled surgery for February but my main concern is navigating the steps in our house. There are 10 cement steps outside the front door, and 13 steps up to the bedroom. If I elect to stay on the main level, there are 4 steps from entry level where the bathroom is, down to the living room. I can't get a direct answer from the DPM to "can I put weight on the heel". He said "You probably won't want to". So my main concern is getting from the car into the house and up to the bedroom where I can stay in bed and be near the bathroom for the first day or two. Does anyone have experience navigating steps on Day 1 and 2 after the surgery? I've never used crutches so using them on steps is scary.
ReplyDeleteDiane
Diane, I hope you will have someone to help you up the stairs. And.... why not get the crutches and have some practice on the steps before the surgery?
DeleteIf I remember correctly, I was able to put weight on the heel, but it was not too comfortable on the first day.
I had no real issue using stairs since I could walk on my heel pretty easily (the nerve block they used also kept me from experiencing any pain for the first few days). I never had to use crutches or a cane. But I'd make sure you have a good banister you can trust for support, especially going downstairs.
DeleteHI Diane,
DeleteI am in the same stage as you and have surgery next week.
The surgeon really wanted to do a fusion and told me I would have to go to rehab. for 6 weeks, no weight on the foot at all.
As I have pets at home and a job I need to go to, I have opted for the Cheilectomy.
Surgeon is not that pleased but my cirucmstances do not allow for that length of recovery time just now.
HOpe you have somebody to be with you the first couple of days.
DeleteThanks for the response everyone. My husband will be here to help out. My doctor is going to refer me to someone to help show me how to use the crutches on the steps and I will practice before surgery on Feb 11th.
Carol, good luck with your surgery this week. Be sure to post your experience when its over. I agree that fusion just seems too radical and too long a rehab period. Better to try the simpler procedure first.
Diane
HI Diane,
DeleteDay 2 here in Sydney Australia.Hospital expereience was fine.Out of theatre at 4.30 and released at 5.30.
I bled a bit over night and went to my GP for bandage renewal. That was fine, but I fainted after that. It seems that I had been over prescribed with Panadeine Forte. I reacted badly to the codeine. Later I threw up but felt much better afterwards.
Slept well last night with 2 panadol every four hours. I am a little uncomfortable but it is prefereable to taking Codeine.
Showering is fine in a chair with two plastic bags taped firmly around my leg. I have cling wrap around the bandage to keep it clean. Walking is fairly uncomfortable at the moment and I can only used the outside of my foot.
I don't have the luxury of 6 weeks rehabilitation at the moment. If this doesn't work, the option of fusion is still available.
Seems that the drug regimen is most important. Be one step ahead of the pain and take the drugs religiously.
Carol
Go up and down the stairs on your butt. Learning to navigate stairs with crutches is a tricky process. Much safer to just sit down and slide down the stairs.
DeleteI am a 49 year old woman who is having a right cheilectomy on Tuesday. I am nervous because I ride my bike almost 50 miles a day and not riding will be difficult for me, but I want to get this done before the pain becomes worse. I cannot wear any type of heel whatsoever for even a brief time.
ReplyDeleteI'm having a cheilectomy on my left foot on 11th January. I am 68 years old. Will be following this blog. It's great.
ReplyDeleteI am having a cheilectomy tomorrow, Jan 15th. My doctor told me I might want to have someone to drive me home. He did not mention crutches and said I would be able to walk right after surgery. I do hope he is right, especially since I will be watching four of my grandchildren for 6 days following! Now, I am not so sure about this whole recovery time! I will see how it goes. My oldest grandchild is almost 13 and very helpful, so I think that will go well! Thanks for the blog Parsifal!
ReplyDeleteHmmmm... you should be able to walk on your heel, but it will not be normal walking. I do not think it is possible to say how you will feel after the surgery. Let's hope for the best, yet my advice is to have someone who will be able to help for 1-2 days - just in case.
DeleteI would not like to be looking out for anybody after the procedure. I was vomiting from the codeine and dizzy.
ReplyDeleteDay 11 after surgery. Stitches out. There is a bit of swelling around the joint, minimal bruising.
ReplyDeleteI will have to wear a soft shoe for a while but so far it is all looking OK.
3 weeks after surgery... going back to work next week. Still a little swollen and sore but feeling pleased with everything so far.
ReplyDeleteHad my surgery on 2 Feb 16. The block on my ankle wore off about 3 or 4 hours after surgery (right foot/big toe--my driving foot). I did not have crutches, but I did have a walking 'boot' rather than that ugly shoe they gave me, which offered more support too. I also did NOT have any pain meds. I chose not to since they make me 'hanging my head in the toilet' sick. It hurt like hell the first 24 hours and getting up and downstairs was challenging, but not impossible. I am currently 5 days post-op and yesterday I was actually able to drive! I was on surface streets & have yet to drive on the freeway. I drove more out of necessity as there was nothing to eat in the house! I did well, but it was slow going at first, but I also had help. My daughter and I went to 3 stores which was a HUGE step for me since I'd only previously been able to walk to the mailbox at home. I did too much and was sore by the time I got home, but have been elevating my foot since then and it's better as long as I elevate it. I'm hoping I'll be able to drive to my post-op appointment, since it is a further distance and I'll have to take the freeway. Fingers crossed.
ReplyDeleteI'm scheduled for April 1 and just digging into this now to really be 100% sure. One thing that I hadn't even thought of was going to an orthopedic surgeon! I found a well-regard podiatrist who does a lot of these surgeries. I'm interested to hear people's thoughts on that.
ReplyDeleteOK so I am adding in my experiences to the relevant sections.
ReplyDeleteA bit of background - I am a 45 year old female, reasonably fit and healthy (I do a lot of walking), and had pain in my right big toe for a couple of years which got progressively worse, hence the decision for surgery.
My op was on Tuesday 7th March. I was extremely nervous, but it was fine, the hospital staff were wonderful. Tip: wear something you can easily put back on after surgery but also bring something warm - the waiting room was freezing!
Afterwards I felt a bit woozy from the anaesthetic but not in any discomfort because of the anaesthetic in my foot. However, that didn't last long! The anaesthetist had told me that my foot should be numb for about 10 hours but to start taking the painkillers as soon as I felt anything at all in it. However, it seemed to wear off much more quickly - because I wasn't expecting that I probably didn't take the painkillers as soon as I should have or in as large a dose as I should and was in a lot of pain the rest of the day and night. The painkillers didn't seem to help, just make me sleepy and nauseous. So the first day was not great!
Will continue under day 1.
Hi, are you ale to walk now without pain. Do you feel it was worth it. My surgery (right foot) is scheduled for June 13. Thank you. S
DeleteHi there, I feel like I am in the minority with my recovery, or at least the minority on this board. I had a cheilectomy on my left foot, done this past Wednesday, 3/23/16, so I suppose today puts me Day 3 of recovery and after ready the bulk of the stories, I feel as though I should be further along, or at least feeling better.
ReplyDeleteStarting with the day of the surgery, I was given a nerve block that didn't take fully. When I woke up after surgery, I could actually still feel my toes although I did have some tingling on the side of my foot. It wasn't until I got home that the nerve block actually kicked in, so besides my foot feeling very heavy and numb, the pain was manageable. Foot was iced and elevated all day / night (30 min. ice on, 30 off.) Slept pretty much all day long taking 2 percocets every 4 hours.
It wasn't until the next morning at 6am when the pain felt excruciating. I had stayed up on my percocet throughout the night, so this pain was simply the nerve block wearing off. At this time, I got permission from Dr. to add in 800mg of Ibuprofen in between dosages of percocet. Day one (after surgery was a rough day, but continued with ice, meds, and elevation all day.)
Day two was better than day one but still no where near close to walking with the boot. I didn't like how the 2 doses of percocet was making me feel, so I backed it down to one.) My foot hurts. Even with crutches, as soon as my foot goes from being elevated to hanging, even with no pressure, it begins to throb.
My foot feels swollen and tight and I feel like I can't even close my boot up all the way due to the bandage being so heavily wrapped around my toes. I was instructed to leave bandages on until my post op appt, which is 2 weeks from surgery date.
Day 3 after surgery is today, (I will add appropriately starting tomorrow on day 4, but since I was jumping in late, I figured I would summarize up to now.) Slept better, still taking one percocet every 4 hours. Drank prune juice for constipation, I wish the Dr would have told me to take something over the counter for it. Pretty much the same as yesterday as far as pain. Manageable but not walking on it in boot at all and can't imagine not sitting here all day with it elevated. Would like to take a shower, but not sure I'm up for the effort involved. Staying hydrated. The weight of the ice hurts, and I actually don't know if it's doing anything, again b/c of the bandages.
Hope to at the very least, go out side and sit for a little sunshine.
Thanks,
Kelly
So, was it worth going through all that pain?
DeleteMy Day One Story... I'm bored sitting on the couch with my foot up, so will add my bit for those who are checking out the site wondering about the range of experiences.
ReplyDeleteI had propolol and a local block, the surgery took all of 60 mins, and it took me maybe 45-60 mins to wake up sufficiently to use the bathroom, get dressed and leave. Easy peasy. The only "lesson learned" I would note for someone going into the surgery is that the aftereffects of the anesthesia provide quite a lot of pain relief for several hours post-surgery. Two things about that: one, do anticipate the need for meds. I did take the vicodin I was prescribed when I got home, but somehow I think 8 hour post surgery the anesthesia wore off and the 4 hours worth of vicodin wore off, concurrently, and suddenly was in tremendous pain, at 2am. Needed to get out of bed and get that foot back up higher, take more meds, and ice it for a couple of hours in the middle of the night. It does seem like that first night one would need to foot up up up! Mine was very swollen.
Second thing is that in the hospital I used the boot to get up and go to the bathroom, but that was also apparently only possible because I was still under so much anesthesia/pain block. No way no how can I now (at day 3) put any weight on the foot, so for those reading this, that might help manage your expectations. And a good reminder that you really aren't supposed to walk around anyways! But still, I really don't understand why I was not sent home with crutches. It couldn't hurt to ask, if you haven't been offered them at the hospital or by your doctor.
Onwards and upwards...
Some great comments here and good to read before I head into Cheilectomy on my right foot in a couple of weeks time. I actually need to get both toes done but wondering if this is a good call or not. The surgeon has recommended getting both toes out of the way but the road to recovery may be a lot more difficult and this is the part I am trying to gauge.
ReplyDeleteIf anyone has been in this position it would be great to hear. I'm booked in to have both toes done, but I can make a call on the day if I only want to get one done.
Cheers, Martin
It's been 16 months since I had my surgery and my foot is in more pain now than before I had it done. However, at a recent trip to the podiatrist, he suggested that the fractured sesamoid bone and a bone fragment to the side of it that he didn't remove in the first surgery may be to blame. The actual toe joint looks good. Originally, he didn't think the sesamoid issue was causing me problems and I didn't want to have two incisions (one on the top of my foot to remove the bone spur and another under it to remove the sesamoid bone). Now I think I made a mistake. The cost and pain of going for another surgery keeps me from wanting to do it. But I really can't walk more than about 2 miles before I'm in serious pain and I can't imagine living like that forever. Did anyone else have a similar situation and have one of the sesamoid bones removed?
ReplyDeleteI had my Cheilectomy surgery this morning, and your blog has been my guide since scheduling the surgery. Thanks for all the terrific and real time info. As an avid runner of road marathons, trail ultras, and the occasional triathlon, I will try to follow along daily with my experiences. Surgery this morning was a breeze, due to the meds and block. I'm sure the pain will set in this evening, and I will take the pain meds for the first 24 hours, hoping to switch to Advil tomorrow. The whole process took 3 hours, but the actual surgery itself was only 50 mins. I had two large bone spurs on top of my arthritic joint, and had broken one of the bone spurs (which prompted me to go ahead with the surgery).
ReplyDeleteSame deal for me. Never took pain meds and believe my physical condition (35 miles per week) helped. Ran 1 mile 1 week after surgery as test with no issues. 3-4 weeks later back to normal pace and mileage with no ill effects. I also focused on increases caloric intake of high quality foods during the healing process. This blog was also a great way for me to learn about this surgery. Ps - I shared my daily mileage stat with my surgeon during my preop and told him not to @"/)$ up. 😄
ReplyDeleteYou sound like me...I actually ran 40 miles last week, and took only Advil last night after surgery. Not a fan of painkillers - took 2 and stopped. So far, foot is fine today. I'm going stir crazy ;-)
DeleteHi,
ReplyDeleteI had my right MTP fused on Thursday and was wondering if anyone knows of a good blog -- like this one -- for people who have undergone fusions. From reading what everyone has written here, fusion sounds like a much more difficult recovery, but after going in, the surgeon said I made the right choice to have the fusion (not sure why -- my husband didn't convey that part -- will have to find out).
I'm scheduled for a cheilectomy tomorrow and I'm glad I found this blog. I've been an RN for many years and always heard about how 'horrible' bunion surgery is to recover from. Mostly, horror stories about the pain.
ReplyDeleteSince I struggle with constipation issues, I plan on using MJ edibles to cope with the pain, as MJ is legal in CO- rather than deal with the side effects of opiates.
I was wondering if anyone knows of a similarly typed blog for MTP fusions? I had mine last Thursday. The doctor had originally given me the choice between cheiloidectomy and arthrodesis, but I only wanted one surgery knowing that it would be likely I'd have to get the arthrodesis somewhere down the road anyway. After doing the surgery, my dr. said arthrodesis was the better choice (I don't know why yet because she said this to my husband and the details were lost....). Anyway, this surgery has a little tougher recovery, but I haven't had much luck finding a blog like this for fusion/arthrodesis. If anyone knows of one and can pass it along, I would appreciate it!
ReplyDeleteHas anyone had cheilectomy along with joint resection (phalangeal osteotomy)? I guess that's a decision that the surgeon makes when he gets in there? Thanks for this forum. Have been putting off this surgery but hearing others go through makes me think I should do it. Difficult decision.
ReplyDeleteI had a cheilectomy on my right great toe on June 24. I'm having a couple issues. The bottom on my foot is numb and feels like I'm stepping in a lump. Maybe I'm pushing things and walked too far too fast? The doc said the foot would let me know if I overdid it, but it never quit screaming long enough to tell me a thing. (Kidding, kidding.)
ReplyDeleteMy second issue is the other toes, plus the top half of my big toe. The second, third and fourth toes feel like they've been stepped on by a horse or something. Is this swelling causing this? The nail on the big toe feels like it has pressure. Weird.
Doc doesn't seem too eager to part with pain pills three weeks out, but I only have one kidney and need to be careful of otc painkillers. Sigh.
I never had to take pain pills because the pain was manageable after the pain block the surgeon used wore off (a few days after surgery). But it's 18 months later and I'm still in pain with a swollen joint that looks fine in the xrays but is always inflamed. I also had numbness/nerve pain in the outside of the top of my big toe, which isn't as bad anymore. I just got custom orthotics by a guy who only does prosthetics and orthotics and he's having me put a steel plate under the right one for 8 weeks to keep the joint from bending and give it time to heal. Unfortunately I haven't found a pair of shoes that it fits in well enough that my toes aren't completely squeezed into the top of the shoe. Still working on that. The surgeon has suggested a second surgery to take out the fractured sesamoid (didn't do that with the first surgery), but I'm avoiding that since I'm not trusting the process at this point. Bottom line is that not everyone is going to have a perfect resolution from this.
DeleteRecuperating from my first Cheilectomy, will need second one done eventually. This blog has been helpful. I used Oxycodone for bout 36 hours after surgery and then moved to OTC drugs which have done the trick. Next one I'll make sure to take 2 pain killers before I go to sleep after surgery. First night was pretty bad, but now pain is very manageable. Biggest helps were having a walker, a shower seat, and a reclining chair. Friend recommended putting ice on ankle and under knew which I've also been doing. I'd also start taking stool softeners right after surgery if taking heavy pain meds. Thanks for this blog!
ReplyDeleteIam supposed to be doing on both the toes ? Is that fine ...Iam told i can start walking normally in a matter of days ...
ReplyDeleteis it true? going by this blog i guess it is not that simple and it would take days to recover . Advise please
If you look at the survey, only approx. 12% of people had bilateral cheilectomy. I doubt you will start walking "normally" just in a few days - of course it depends what is being referred to as "normal". Based on my personal experience - with unilateral cheilectomy (which may be different from what others have experienced), I was able to use the foot after a few days, but I would never call this "normal". I was able to walk without crutches, and it is probably sufficient to get to the car and back, or use the lift in a building, bot no long walks, no multiple flights of stairs to climb, no running, no kicking, etc. Of course with bilateral surgery the recovery may take a few days longer.
ReplyDeleteThank you for your reply
ReplyDeleteThe pain is bearable in both toes and not very severe i can manage to wear closed shoes . Only that i tend to use my sides of my feet more while walking and i f you look at my feet they do look normal and no bumps .. In such a scenario do you think it is a good idea to do the "dorsal cheilectomy' on both feet.
I go for my walk wear my sneakers etc
Mridz, I really cannot guess what will be the outcome for you. The studies show that for most people cheilectomy brings a significant improvement, and this is what you can see also in the comments on this blog. However, this is all statistical - 'most people' does not mean everyone. Thera re a few who see no improvement, or even suffer complications - like with any treatment. Therefore, it is a bit of probability game - with the odds being higher that cheilectomy will make things better.
DeleteDoing it on both feet at the same time vs. one after the other is a matter of personal preferences. Bilateral cheilectomy means only one surgery, so it is quicker, and also more cost effective if you are in a situation where you need to bear all or a portion of the costs associated with the surgery. But the recovery of the function (walking) takes longer (as both feet undergo the surgery), and if things go wrong, they may go wrong in two feet. Doing them sequentially means two surgical procedures (which means twice the hassle and perhaps more costs, depending on your situation), it all takes longer, but each time it is done you have the use of the unaffected foot. People may have different preferences, depending on many factors, including the lifestyle, availability of support, employment/job situation, financial impacts, etc. You really need to take everything into account and decide for yourself...
Hello, thanks to all for sharing here. I am going to have bi-lateral cheilectomy soon. I'm not afraid of surgery, I'm just a bit worried about recovery. I live alone in a 3 story townhouse and I have animals to take care of including a dog who will need walking. And I have a demanding job which involves travel and deadlines and I'll need to be back at it asap. My insurance only covers 80% which is why I'm having both done at once. If I have to crawl up and down stairs I will! I'm a very healthy and strong 55 year old.
ReplyDeleteIf anyone who has had the bi-lateral can offer any insights, I'd appreciate it. How long before you can put any weight on your feet? Were you able to at least put weight on your heels soon afterward? I won't need to drive and I'll have a few people coming in and out with food, etc.
Thanks!
How long before you can wear a shoe? I'm in the process of deciding to get the cholecystectomy surgery. I'm very active. I've had shots in my toe joint several times but they don't last long anymore. I'm not concerned about the pain it's the time that I'll be laid up. Thanks for this wonderful blog!
ReplyDeleteCholecystectomy - gall bladder surgery? Or is it just a typo?
DeleteIf you meant cheilectomy, please have a look at the survey; it shows how long it takes for most people to be able to wear normal shoes.
Does anyone have a job that requires standing and walking all day? Am wondering how soon I can return to work after surgery.
ReplyDeleteI Am a kindergarten teaching assistant and on my feet and walking the majority of the day. I just got home from the hospital today from my cheilectomy. The doctor told me 3 weeks no work because of my job.
DeleteI had my cheilectomy today at 12:30. I'm home now and elevating and icing with the cryo-cuff. I had a general anesthesia and the orthopedic surgeon numbed area with lidocaine. They gave me Percocet before I left the hospital and have a prescription for dilaudid for pain and phenergan for nausea. He also recommended aspirin twice a day and stool softener, which I am definitely taking. Opiates can wreak havoc in that area!
ReplyDeleteMy family was told after surgery that I was Stage 4 hallux rigidus and was really close to needing a fusion. I'm still hoping this buys me a little time since I am very active and hope to remain that way as long as possible.
My foot is pretty achy right now even with the meds and swollen. A lot of bone and spurs were cut out. I had less than 10% dorsiflexion up and down prior to surgery.
I asked for crutches even though the doctor said I could walk on my heel with the ugly, special shoe.
Hoping the achiness subsides more so I can sleep tonight. I'll post tomorrow with updates.
The worst part is over! Now your biggest challenge will probably be staying sane and patient while you recover.
DeleteI stayed on the prescribed meds whether or not I felt actual pain for a couple days specifically to head off any potential pain feedback loop - it seemed to help. Good luck with resting!
My first post here; I'm now 11 hours post-up. Thanks, Parsifal, for your detailed blog And others who posted-VERY helpful!!! I'm a 48 yo female, active, good muscle tone (crossfit and dog walker/runner). Had cheiletomy in major hospital on left foot by DPM who does on average one a week. I had sedation and nerve block. Still no pain nor sensation in toe. I Feel good! But i know the pain is coming so will be prepared for overnight.
ReplyDeleteI have crutches for outdoors (car to house after surgery-only one small step up). And walker for around the house (ranch style- one floor). Seems to allow me to walk safely with reduced pressure on foot. I din't get a shower chair-we'll see how that works t for me.
I have a huge stack of pillows to keep foot elevated above heart as much as possible. Ice packs on back of knee for 15 minutes every couple hours --dr says best way to cool the heavily wrapped foot (gauze +elastic + black hard-soled sandal).
my history-I have had pain and reduced mobility iin this toe for about 5 years. At first i could barely wallk from the pain, eventually I figured out i could manage the pain with monthly accupuncture and the right shoes. But still had some pain (2-4 range on average), had to buy expensive shoes, and still limit activities significantly to avoid worse pain. My. Dr says he sees better outcomes from those under 50, so i figured tthis is the best time unless i want to live with hallux rigidus for the rest of my life. I want to be more active and less dependant on accupuncture and the perfect shoes.
So far i feel quite normal with appetite, energy, and mood. I will try to update in the comments As i go.
I have been putting off the surgery because I was told by 2 doctors that a cheilectomy was not a permanent fix. The soft tissue in this joint can not be replaced and thus another cheilectomy or a fusing will be needed 5 to 10 yrs down the road. I would appreciate any comments on this notion.
ReplyDeleteI was told the same. I put mine off for several years and had the cheilectomy 2 1/2 weeks ago. The doctor said I was stage 4 hallux rigidus. I'm just hoping to get some pain relief and movement back before needing a fusion.
DeleteMy doctor did say that once you have the fusion, there is no going back. That's why he still recommended the cheilectomy.
Good luck!
I had my surgery done over 3 year ago on my right foot. I run 35 miles a week and have no pain or issues. I have no reason to believe I will need another surgery.
ReplyDeleteGreat blog, thank you! Getting ready to have cheilectomy soon.
ReplyDeleteThis blog has been very helpful to me in making my decision about surgery. I thought that all the people who added their experience helped give a balanced picture, so I want to add to that balance.
ReplyDeleteEaster Monday April 17th, I had my first visit with a podiatrist after trying to work through my left big toe discomfort. I was told hallux limitus stage 1 and cheilectomy. Wanting to make certain I went to another podiatrist for a second opinion. The second doctor agreed with the diagnosis, but took the treatment further but adding compression via osteotomy on the metatarsal. After weighing both options, I choose to go with the second podiatrist.
Surgery Day- late surgery meant that that drugs don't wear off until almost bedtime. Found out that I have small veins. Had to use a 24 needle and it still hurt. Apparently in my twilight sleep stupor I insisted on a photo for Mark. Not feeling any nausea but still haven't taken first pain pill. Holding out to make it through the night. Took the first hydrocodone at 10 with no stomach affect.
Hi Frankeee
ReplyDeleteI am 31 and considering it as well. Pain for 2,5y and now clearly shows as osteoarthritis and an osteophyte on the side of the joint. I can't wear narrow shoes anymore.
I am interested in your "youngster" perspective: did you recover fast? did the pain disappear?
Kindly
I am a 38 year old woman considering this procedure. I feel like this is on the far young end of the spectrum of those I've read about who have pursued it. Are any such perspectives out there (such as those above)? Trying to preserve my mobility for as many decades to come as possible! Would love to connect with any younger folks who have pursued a cheilectomy.
ReplyDelete3 years ago, I had a cheilectomy on both feet about 6 months apart. I'm happy to report low pain and good mobility as compared to before surgery. I am very active and can only tolerate low heels (not high heeled shoes). I need to wear sneakers if i am walking for miles.
ReplyDeleteMy surgeon put a piece of tendon as a cushion in my joint. He had offered me an artificial joint which (after a second opinion at HSS) I decided against. For one reason, an artificial joint needs to be replaced in about 10 years and I'm only in my 40's. Anyway, I will probably need a revision surgery anyway in the future as arthritis is a progressive disease and will probably continue to wreak havoc with my joints.
Another note for those who have not yet had surgery: I went back to most activities within 2 weeks. Drs. want you to flex that joint - get it moving. However, my foot was swollen to some degree for a good 4 months. I ended up wearing flip flops and when the weather got cold, I cut open the top of my sneaker. Wrapping the foot up tight every day did help with the swelling as did keeping it elevated but who can elevate their foot for 4 months.....
Good luck to everyone.
Home from the surgery. Terrific experience. Wheeled into OR,. Given combination of versed for anxiety and then profofol coming in from an IV line. Was “out” within seconds and woke up with all doctors stating I did great. My right foot wrapped and I’m in a walking shoe. Was given nerve block so as of this writing part of still numb. Surgery was over 7 hours ago, no need for any pain medication yet.
ReplyDeleteI had a 10am surgery, and it went very well. They did all of the requisite prep work, and gave me an ankle block. The IV being put in my arm was awful, but that was honestly the worst part. I got some anti nausea medicine and a light dose of anesthesia through my IV, and they had me turn over for the ankle block. I was already feeling a little sedated.
ReplyDeleteAfter rolling into the operating room, I don't remember much until I woke up close to the end of the surgery to music and the surgeon saying that we were almost done. They stitched me up, and I went to the recovery before heading home. My surgeon did tell my wife and I before we left that he ended up doing a "small" osteotomy also in addition to removing several loose bone fragments and spurs. He said that it was good that I did not wait much longer.
Got home, and I had no real hangover from the anesthesia and did not get sick. The nerve block lasted all day, and I iced all day with the foot elevated on a wedge pillow from amazon. Around 2am, I woke up and could feel my foot starting to come back to life, so I took my vicodine to get ahead of any pain. After waking up around 7 am for the night, I took another for precaution, and I never took another of the pills. My surgeon suggested that I would probably not experience much pain, and it looks like that was indeed the case. So far, so good!
Adding my Day1 experience and types of home products helping me work from home in bed this week.
ReplyDeleteMe: 50yo female, athletically active, L toe bugging me for ~4 yrs (the cause is probably extremely flat feet & it's on L because my L leg is longer). I finally decided to do it because it's preventing me from big hikes/long runs.
Procedure: Had cheilectomy with debridement on bottom of joint (the latter to improve mobility but podiatrist/surgeon said it will make it a more painful recovery, in case my experience seems worse in coming days).
Pain Mgmt: During surgery, had local injections to numb foot and propafol. No nausea, but it made my nose itch like hay fever. Foot actually hurt shortly after coming-to, so nurse gave me my first hydrocodone acetaminophen 10-325, which my doc prescribed to take every 4-6 hrs (whole tab to start, then move to half tab on day 2 or 3). Zero pain on the meds now (7hrs post-surgery). Thanks for reminders on this blog to consider stool softeners - considering the inactivity on top of the meds, this is great advice.
Bleeding: Thanks to my doc for telling me it will be normal to see bloody dressings (I do) and that's why she wrapped it snugly so blood with go outside instead of pooling inside.
Icing: I've iced directly by putting foot in a plastic bag and wrapping ice pack with an ace bandage with velcro -- tools that got a lot of use after my recent runs :( Nurse also advised to also consider icing behind my knee if I have pain tonight.
Products: To elevate, I got a large foam pillow with wedge on one side that provides nice supports under the thigh. I got a computer tray with legs that have three adjustable joints on each leg and each side is set independently, making it easy to accommodate the wedge pillow on one side. It's working extremely well to prop my computer at an angle and then adjust to flat to eat. I won't share links to avoid advertising specific products, but you can get this type of stuff on Amazon. Note the computer tray is made more for allowing you to work at different heights on a desk, but it also works as bed tray IF your hips aren't too large (mine measure 36" and you could be a bit bigger but not too much).
Thanks: This blog is extremely useful for tips and to mentally prepare for the range of experiences that I may encounter. Thanks to Parsifal & others.
November 2017, Chicago. I'll try to post my experience, as I had a cheilectomy at 7:30 am this morning, and at 11 am I am back home lying on the couch with my foot elevated, iced, with an opiate in my system though the leg is still numb, and drinking coffee.
ReplyDeleteI'm 49, athletic, and fit. I waited years following repeated "turf toe" damage from judo practice, but for the past 2 or 3, every step hurt a bit (a chiropractor had kept things fairly mobile.). Surgeon said I had stage 2 arthritis, but once he cut me open, told my wife it looked worse. He expected I'll have 5-8 good years before needing something else.
The hospital process was smooth, easy, efficient. I told the anesthesiologist that I could still wiggle my toes, and then ... it was over.
23rd November 2017, Sidmouth UK. Had cheilectomy on both feet today under general anaesthetic. Surgeon was very professional and nurses very kind. Went home later in the day with a pain blocker which enabled me to walk with post-operative shoes and crutches from the car (journey about 40 mins) into the house and up the stairs. Pain relief consists of Codeine, Paracetamol and Ibuprofin. Not looking forward to when the feeling returns!
ReplyDeleteToday I had a bilateral cheilectomy!! 7 hours out and so far so good. No pain as of yet, but my feet are still numb. First Hydrocodone on board, icing and elevating. The worst part so far was some discomfort and the IV site before the surgery. Walking in surgical shoes without crutches and even able to do the stairs.
ReplyDeleteThis blog was so helpful to me as I researched this whole process. I chose to do them both at the same time because I only wanted one recovery time due to job and active lifestyle! Hoping for a very uneventful/relatively pain free recovery!!
Had my surgery this morning, everything went fine, no pain. Ate breakfast when I got home without any ill effects. Been laying in bed most of the morning with my foot raised and walked to the bathroom using my new shoe a few times without any pain. I did take one oxy this morning as instructed by doctor, don't really feel that I needed it. Sitting at the computer now with my foot raised on a pillow on a small chair. No pain, just not very comfortable with having my foot raised while sitting in my desk chair. Hope tomorrow things go smoothly as they have today, will see!
ReplyDeleteYou have a nice community here. Had this done yesterday 1/8/2018 in Pittsburgh, with the addition of cartilage replacement Cartiva. Had 3 large bone spurs taken out, one was free floating. Gave me a nerve block behind the thigh which 24 hours later is still numb. Same nausea with oxycodone and anesthesia through 3rd 4 hour 10mg dosage. Had sleepiness with the combination, but insomnia through the night. 3rd hour of cycle is sleep time. Still can’t move ankle or toes and nerve block still in force. Getting some tingling, so it’s coming back. Foot up as much as possible. Ice packs around the calf and this is suppose to help somehow. Will not argue with city hall. Follow up visit with Dr to remove dressing January 30th.
ReplyDeleteThanks for the blog, I will trail you recovering very, but good to know what is next.
Tom
First, I also want to say thanks for such a helpful site. This is day 1 for me - about 8 hours after a right foot cheilectomy. I'm a 52 year old bloke and quite fit - mainly I am (or was) a runner but also play 5 aside football with friends and do circuit training. The toe has got worse over many years and has got to the point where I decided to have an op before I got really disabled by it. Like a few others there was a decision to be made - fusion vs cheilectomy. I went for latter, hopefully a good choice.
ReplyDeleteThe day has been OK. I'm a UK based NHS patient. I had to travel over a 100 miles for the op - 2.5 hour drive. Then waited nearly 5 hours at the hospital. But the staff were genuinely lovely - for all its problems, we really do have a gem of a health system. The op was done on a local so I got hear all the power tool stuff - but it was genuinely painless and there was someone who was just there to monitor and chat with me throughout.
I could have done without the long drive home (needless to say I was not driving!) but it was OK. About an hour after getting home the anaesthetic had properly worn off and my foot was really sore. They had assured me that I didn't need anything more than paracetamol but I wished I had been a bit more insistent on something stronger. Actually I remembered I had a few codeine/paracetamol leftovers from a disc problem nearly a decade ago, so a took a couple of these (alright, full disclosure, and washed down with a few beverages to cheer me up). That has controlled the pain and I'm hoping to get a bit of sleep. More than anything, I'm just pleased to have finally got this done and looking forward to recovery.
Ade
First off, this blog was a godsend. No doctor will ever provide the details that are found here. I am 47 yr old female with 1st MTP cheilectomy to treat a ballet injury. I only needed a combo of Tylenol/Advil for 3 days. Nothing after that. I only used 1 oxycondone (5mg) the first night only. I was able to put my heel down the morning after surgery, and progressed quickly to limping, then shuffling, and normal walking by day 4. My advice: do not attempt to recover alone if you're single, no matter how fit you think you are! Find round the clock help for the first 3 days. You need help at the hospital to go to the washroom, to get into a cab home, to get into your apartment. You will need assistance to have food prepared and served to you, and possibly to get in/out of tub. The best advice I can offer is to wear a fanny pack at home containing whatever you frequently need, so when you finally make it to one room, you have all your stuff with you and don't need to hobble out again ie. glasses, Advil, cell phone, etc. Nothing worse than finally making it to Room A with difficulty, and forgetting half your things in Room B. From Day 1 to 7 the daily progress was huge. From day 7 to 14 I stayed exactly the same, and in that time if you saw me on the street you'd never know I had surgery (except seeing the post-op shoe). For those on the fence about surgery: find the best foot surgeon in your province/state and you will be in good hands. Thank you again for this incredible blog.
ReplyDeleteI had bilateral cheilectomy this morning and wanted to add my experience. I'm a very active 60yo female with very large dorsal bone spurs on both feet that were keeping me from getting up high on my toes in ballet. I only started ballet about 3 years ago, but I used to be a runner (4 miles a day 4-5 times a week), and at one point I did the stairmaster (40 min/day 4-5 days/wk) for about a decade. That's where I did most of the damage, I think, because I would be high up on my toes, in socks, pounding those joints on the stairmaster in my living room while the kids were still sleeping.
ReplyDeleteI first noticed restriction in the range of motion about 10 years ago, and some swelling/pain after wearing heels, but it didn't really interfere with my life until I started ballet and realized how stiff those joints had gotten.
I did notice the stiffness and pain with dorsiflexion at other times, not just dance class, because the bone spurs had been getting larger. Bu it was just easier to modify things in other areas of my life. The rest of my foot is very flexible, so I could still do planks and pushups.
I saw two podiatrists and one foot and ankle orthopedic surgeon. All agreed I had stage 3 hallux rigidus (10 degrees on the right and 30 degrees on the left). All agreed that cheilectomy was reasonable. They mentioned fusion as a possibility, since it removes the source of the pain, but there's no way I would consider that.
I took my time deciding between the other two doctors, who both work at the same prestigious teaching university and have about 20 years of experience. I finally went with the podiatrist, who has done more of these procedures and who routinely puts in placental membrane to help with healing, while the orthopedist had never done it. The podiatrist was also more upbeat overall about the procedure helping me, although with all the usual doom-and-gloom caveats about no guarantees about range of motion improving and the possibility of having more pain.
I spent two months being extremely anxious about having this done because I am VERY active and was still able to do the dance classes to some extent, as well as bike riding, and 4 mile walk/runs. I basically workout about an hour and a half to two hours daily-one or two dance classes (tap and jazz, as well as ballet), or an 11-12 mile bike ride, or a long walk, as well as a 15 min core workout I try to do every day. I was worried about having to stop that for the recovery and also about something going wrong and not being able to resume my previous level of activity.
Everything went well this morning. The procedure took about an hour and a half. They gave me some anti-anxiety medication and then propofol for sedation, and I got a forefoot nerve block on both feet, but I only remember being wheeled toward the OR and then waking up in recovery. I felt a little dizzy, but was otherwise ok.
Came home and have been in bed with my feet up on a high pillow since then. I took ibuprofen 600 mg (I'm supposed to take that 3x/day for a week for inflammation). The nerve block lasted about 8 hours (the doc had said 6-10), and when it started to wear off I took a Percocet which helped a lot. I've been icing behind my knees and on top of my ankles for 30 minutes every hour because there are thick dressings on my feet. I have kept on my post-op velcro sandals so I don't have to put them on to go to the bathroom, and that's the only thing I'm getting up to do.
I'm lucky to have a lot of support--my husband has been helping me to the bathroom, and a close friend will be pitching to help as well so that my husband can go out and do things over the next week or so without having to leave me alone. And I made a lot of preparations--I planned my meals for the next 4-5 days, bought ice packs, have most of what I need at my bedside table--medications, vitamins, water, charging cords.
I will try to update this day by day, since there haven't been many comments on here (or anywhere!) from dancers.